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I think I found the "it" that caused my PGAD

Posted: Mon Apr 09, 2018 12:46 am
by Hopeitworks
Hi,
I have always believed the cause of PGAD was my hormones. I base my theory on this because I got PGAD when I stopped taking Spironolactone( Blocks testosterone and DHEA). I recently had a lot of hormone testing done and I attached some interesting findings.

My Sex binding hormone is 2,000 - so do you all think this could be the "it" that caused PGAD? My Testosterone and Estrogen are changing rapidly from your low to really high. I read that having a high Sex binding hormone level can be treated with oxytocin. I am seeking your thoughts if you believe I am on the right path?

I don't have PN symptoms just PGAD my MRI didn't show anything of real significances.

I am meeting with Dr. Dob from Johns Hopkins this Tuesday and I am hoping she will help me.

Hope

Re: I think I found the "it" that caused my PGAD

Posted: Mon Apr 09, 2018 2:15 am
by April
Oh, wow, Hope. The range for that hormone is 24.6 to 122, and you are at over 2,000, so something is definitely wrong. I didn't know what that was, so I did some googling. So, anything I would report on that would just be from a website. So you see the doctor on Tuesday? When a patient has a blood test result that is significantly different from the range, the clinic usually calls ASAP and lets the patient know and gives them a sense of what is going on. Have you gotten a call? I suppose Tuesday is right around the corner, so maybe the doctor is just waiting to go over everything on Tuesday. The good news is it that you may be able to pinpoint the cause of your PGAD. Thank you for sharing all this, and do keep us posted.

April

Re: I think I found the "it" that caused my PGAD

Posted: Mon Apr 09, 2018 2:30 am
by Hopeitworks
April,

Well, the doctor that ordered the test is not the same doctor I am seeing on Tuesday. I can't afford to see Dr. Goldstein, but it was kind of him to order the hormones testing. Hopefully, Dr. Dobs is full of useful knowledge and can help me. I am keeping my fingers and toes crossed that this is the cause. If it is then I am very hopeful I have a way to be treated successfully. Or at least that's what I am hoping for.

Hope

Re: I think I found the "it" that caused my PGAD

Posted: Mon Apr 09, 2018 5:32 am
by Violet M
Hopefully you are on the right track. I'm not an expert in PGAD caused by hormone imbalances but the doctor you are seeing should be able to tell you, or if not maybe she can contact Dr. Goldstein for advice. It would be great if this is easily treatable. Please keep us posted.

Violet

Re: I think I found the "it" that caused my PGAD

Posted: Wed May 23, 2018 10:58 am
by jenaliaanderson
I hope you will get your proper solution for your problem.