Health Organization for Pudendal Education

Anyone have Neurosensory Testing with the Pressure Specified Sensory Device developed by Dr. Dellon? I know there has been discussion about him on the forum. I have just started communicating with him via email looking for more information on what nerves he can test. I have more than just PN so looking to try and figure out all my neuropathies and what additional surgery options I should consider if any.

He also had a publication on the use of 3T MRN and correlated with surgical findings. This is the type of publication we need with PN surgeries correlated with 3T MRIs by Dr. Potter.

Below is the response from Dr. Dellon regarding some of my questions. This is in response to several different emails.

"ok
this is about all I can do with you by email

I believe the trocar did damage the ilioinguinal nerve

the PSSD can determine the obturator and lateral femoral

I have not used it to test the clitoris but it can theoretically do this

we have no normative data on the perineum or rectal areas so I would not use it to test for those

the operative note says one obturator nerve was tethered externally, and I can free that one

so I would approach you first with you on your back, and work on removing the nerves injured by the trocar, the ilioinguinal nerve at least, and neurolysis the obturator nerve

the office visit fee is $600 cpt code 99245 and the neurosensory testing code would be 95937, done four times, $75 x 4 = 300 to test the obturator and lateral femoral cutaneous territories."

Maybe at some point he would be willing to collect normative data on the pudendal branch. I see Dr. Howard in a couple of weeks and will discuss this with him. I have spent a small fortune and need to be careful about where I spend my money. Because Dr. Dellon is out-of-network I might just consider having the testing done and have someone in-network perform the surgery ie ilioinguinal.

Hope this helps anyone else considering seeing Dr. Dellon.

NYT,

Correct me if I'm wrong, but are you a Dr. Hibner patient, too?

Thanks for the info on Dellon.

AM

I'm confused. I thought Dellon didn't accept insurance?

I am a patient of Dr. Hibner's and Dr. Howard's but I have multiple neuropathies and am looking for a way to try and narrow down which nerves I should have surgery on and which one's I should not, and minimize the number of nerve blocks. Also, for additional surgeries beyond pudendal I need ie ilioinguinal, genitofemoral, a different approach for the obturator nerve, or femoral decompression surgery I am looking to see if there are other surgeons I might want to perform those surgeries instead of Dr. Hibner or Dr. Howard. Dr. Dellon does not accept insurance which really means they don't bill your insurance company for you and they will be out-of-network for everyone, you pay upfront and then the individual is responsible for submitting the paperwork to the insurance company for reimbursement. Didn't mean to add any confusion.

Karyn, he doesn't accept insurance but he is giving the codes so that she can check with the insurance company to see how much they would reimburse her.

I have an appointment with Dr. Dellon on Feb. 22nd for PSSD testing for the lateral femoral cutenous terrorities and obturator nerve. I asked him about the ilioinguinal nerve but he did not respond. I also plan on asking him if he plans on getting normal values for the pudendal nerve in woman. I'll post my results and experience the end of Feb.

Thanks for the update, nyt and best of luck with your upcoming appointment!
Warm regards,
Karyn

I haven't had any luck finding anyone to treat the ilioinguinal nerve, so I would be interested in what you find out Good luck with Dr. Dellon.

Grace

Grace,
Dr. Conway does surgery on the ilioinguals.