Health Organization for Pudendal Education

Just got back from the vulva clinic at St mary's hospital in London where they told me I have neither vulvodynia nor vestibulitis, nor pudendal neuralgia (seeing how I DO NOT HAVE BURNING PAIN)
they don't know what's wrong with me. f..
they're sending me for an MRI and blood tests (again).my biggest problem remains the inflammation...If anyone applies pressure on the vulvar tissue it swells and then I have a lot of pain until it subsides. WHY????????

I have unexplained vibrations in my body as well...gaahhh

Mary Jane, have you had autoimmune disease such as multiple sclerosis ruled out? Good luck -- I hope you can figure something out from the blood tests.

Violet

Hi violet,

I will ask about that..although it could be unlikely at my age? (26)....I am now considering I could have a disease of the Bartholin glands (chronic inflammation). I have some internal scar tissue from previous surgical cuts (though they were tiny).....I have also noticed a lot of labiaplasty patients have my type of pain....
but still, London doctors suk

Hi there, just wondering if you found out the cause of your pain and a solution? I'm experiencing something similar and in UK also. I'll PM you.

Hi Hopeful
I am not often on this forum now but i think it is some time since Maryjane was on here so you may not get a reply to any pm.
I will pm you the link to a UK Pelvic Pain Facebook forum which may be of help to you as well as this forum.
I am in the UK but a bit wary of Facebook so not on it.
Rosemary x

Thanks for that Rosemary