Just got back from the vulva clinic at St mary's hospital in London where they told me I have neither vulvodynia nor vestibulitis, nor pudendal neuralgia (seeing how I DO NOT HAVE BURNING PAIN)
they don't know what's wrong with me. f..
they're sending me for an MRI and blood tests (again).my biggest problem remains the inflammation...If anyone applies pressure on the vulvar tissue it swells and then I have a lot of pain until it subsides. WHY????????
I have unexplained vibrations in my body as well...gaahhh
It's not vulvodynia/PN
It's not vulvodynia/PN
tiny bartholin infection triggered vulvar nerve pain.
Diagnosed vulvodynia Sept '13 (no burning but electric shocks, paresthesia, aching, buzzing)
Feb 14- Taking 50 mg Ami/Elavil
May 14-pain free with 50 mg Amitriptyline and 300 mg Pregabalin. Back to normal
Dec 15- weaned off all medication, pain free, wearing skinny jeans
April 17- pain returned, Amitriptyline 50 mg. Something doesn't make sense in my diagnosis.
Currently treating depression and anxiety
Diagnosed vulvodynia Sept '13 (no burning but electric shocks, paresthesia, aching, buzzing)
Feb 14- Taking 50 mg Ami/Elavil
May 14-pain free with 50 mg Amitriptyline and 300 mg Pregabalin. Back to normal
Dec 15- weaned off all medication, pain free, wearing skinny jeans
April 17- pain returned, Amitriptyline 50 mg. Something doesn't make sense in my diagnosis.
Currently treating depression and anxiety
Re: It's not vulvodynia/PN
Mary Jane, have you had autoimmune disease such as multiple sclerosis ruled out? Good luck -- I hope you can figure something out from the blood tests.
Violet
Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Re: It's not vulvodynia/PN
Hi violet,
I will ask about that..although it could be unlikely at my age? (26)....I am now considering I could have a disease of the Bartholin glands (chronic inflammation). I have some internal scar tissue from previous surgical cuts (though they were tiny).....I have also noticed a lot of labiaplasty patients have my type of pain....
but still, London doctors suk
I will ask about that..although it could be unlikely at my age? (26)....I am now considering I could have a disease of the Bartholin glands (chronic inflammation). I have some internal scar tissue from previous surgical cuts (though they were tiny).....I have also noticed a lot of labiaplasty patients have my type of pain....
but still, London doctors suk
tiny bartholin infection triggered vulvar nerve pain.
Diagnosed vulvodynia Sept '13 (no burning but electric shocks, paresthesia, aching, buzzing)
Feb 14- Taking 50 mg Ami/Elavil
May 14-pain free with 50 mg Amitriptyline and 300 mg Pregabalin. Back to normal
Dec 15- weaned off all medication, pain free, wearing skinny jeans
April 17- pain returned, Amitriptyline 50 mg. Something doesn't make sense in my diagnosis.
Currently treating depression and anxiety
Diagnosed vulvodynia Sept '13 (no burning but electric shocks, paresthesia, aching, buzzing)
Feb 14- Taking 50 mg Ami/Elavil
May 14-pain free with 50 mg Amitriptyline and 300 mg Pregabalin. Back to normal
Dec 15- weaned off all medication, pain free, wearing skinny jeans
April 17- pain returned, Amitriptyline 50 mg. Something doesn't make sense in my diagnosis.
Currently treating depression and anxiety
Re: It's not vulvodynia/PN
Hi there, just wondering if you found out the cause of your pain and a solution? I'm experiencing something similar and in UK also. I'll PM you.
Re: It's not vulvodynia/PN
Hi Hopeful
I am not often on this forum now but i think it is some time since Maryjane was on here so you may not get a reply to any pm.
I will pm you the link to a UK Pelvic Pain Facebook forum which may be of help to you as well as this forum.
I am in the UK but a bit wary of Facebook so not on it.
Rosemary x
I am not often on this forum now but i think it is some time since Maryjane was on here so you may not get a reply to any pm.
I will pm you the link to a UK Pelvic Pain Facebook forum which may be of help to you as well as this forum.
I am in the UK but a bit wary of Facebook so not on it.
Rosemary x
Re: It's not vulvodynia/PN
Thanks for that Rosemary 