Health Organization for Pudendal Education

went to the PT today and she said sounds like some kinda pudendal entrappemt issue..i have found a pudendal specialist here in ohio and have a appt the end of the month! hoping they can help me..otherwise i will have to travel out of state because there is only 1 dr here that deals with this!! the PT didnt do alot of excersises because of the amount of time it took for me to explain to her what all my symptoms were ,but what she did do was alot of relaxing excersies!! said the pelvis is SO tight and needs to be relaxed. she also said that my back could be playing into this as well!!
so i will start a weekly routine with her in july ,but still going to the PN specialist for more tests and possiably a dianoisis??
wish more drs knew about PN and really wondering why they dont??

Glad your appointment went well, Mom! Typically, when you go to pelvic floor PT, they don't have you do a lot of exercises. Mostly, it's gentle stretching and/or myofacial releases. Have you had a recent MRI of your lower lumber spine? Which PN specialist in your area are you considering consulting with?
Kind regards,
Karyn

yeah i had an MRI done on the lumbar spine about a month ago i have 2 slipped discs and one of them are a protruding disc that is minimally affecting the
thecal sac ...there in the L4-L5 and S1 area...
her name is juliet hou she is a physiatrist with Cleveland Clinic’s Department of Physical Medicine and Rehabilitation that treats pudendal neuralgia..
yeah i likes the PT i went to she was very informative she explained more to me in an hour than any dr did in all the 8 months i have been going thru this!!!..hoping between the two of them they can help me!!!

Hi Mom,

Glad to hear your appointment was worth it and hopefully now you are on the right track for the right treatments!

Please let us know what you think of the doc at Cleveland Clinic. In the past we've had other patients from Ohio wonder who to go to.

Best,

Violet

the dr here was very knowledgable on pudendal neuralgia and spent almost an hr explaining it to me! she said that it more than likey happened due to all of the excersise's i was doing...i was QUEEN of zumba, loved spinning and a power pump class..she said with my discs being slipped it more than likely caused the chain of events..hoping that the PT and trigger point injections she wants to do help me!! im SO glad i found someone here in my area that treats this!!

Hope the treatment works well and that you start to feel the good effects soon
Great that it's local.
Take care
Helen

Great to hear, Mom.

If things go well for you, I'm sure other Ohio patients would like to hear of a doc in Ohio who treats this.

Best,

Violet