went to the PT today and she said sounds like some kinda pudendal entrappemt issue..i have found a pudendal specialist here in ohio and have a appt the end of the month! hoping they can help me..otherwise i will have to travel out of state because there is only 1 dr here that deals with this!! the PT didnt do alot of excersises because of the amount of time it took for me to explain to her what all my symptoms were ,but what she did do was alot of relaxing excersies!! said the pelvis is SO tight and needs to be relaxed. she also said that my back could be playing into this as well!!
so i will start a weekly routine with her in july ,but still going to the PN specialist for more tests and possiably a dianoisis??
wish more drs knew about PN and really wondering why they dont??
1st PT appt!!
Re: 1st PT appt!!
Glad your appointment went well, Mom! Typically, when you go to pelvic floor PT, they don't have you do a lot of exercises. Mostly, it's gentle stretching and/or myofacial releases. Have you had a recent MRI of your lower lumber spine? Which PN specialist in your area are you considering consulting with?
Kind regards,
Karyn
Kind regards,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
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momof3bigguys
- Posts: 34
- Joined: Wed May 15, 2013 11:35 am
Re: 1st PT appt!!
yeah i had an MRI done on the lumbar spine about a month ago i have 2 slipped discs and one of them are a protruding disc that is minimally affecting the
thecal sac ...there in the L4-L5 and S1 area...
her name is juliet hou she is a physiatrist with Cleveland Clinic’s Department of Physical Medicine and Rehabilitation that treats pudendal neuralgia..
yeah i likes the PT i went to she was very informative she explained more to me in an hour than any dr did in all the 8 months i have been going thru this!!!..hoping between the two of them they can help me!!!
thecal sac ...there in the L4-L5 and S1 area...
her name is juliet hou she is a physiatrist with Cleveland Clinic’s Department of Physical Medicine and Rehabilitation that treats pudendal neuralgia..
yeah i likes the PT i went to she was very informative she explained more to me in an hour than any dr did in all the 8 months i have been going thru this!!!..hoping between the two of them they can help me!!!
Re: 1st PT appt!!
Hi Mom,
Glad to hear your appointment was worth it and hopefully now you are on the right track for the right treatments!
Please let us know what you think of the doc at Cleveland Clinic. In the past we've had other patients from Ohio wonder who to go to.
Best,
Violet
Glad to hear your appointment was worth it and hopefully now you are on the right track for the right treatments!
Please let us know what you think of the doc at Cleveland Clinic. In the past we've had other patients from Ohio wonder who to go to.
Best,
Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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momof3bigguys
- Posts: 34
- Joined: Wed May 15, 2013 11:35 am
Re: 1st PT appt!!
the dr here was very knowledgable on pudendal neuralgia and spent almost an hr explaining it to me! she said that it more than likey happened due to all of the excersise's i was doing...i was QUEEN of zumba, loved spinning and a power pump class..she said with my discs being slipped it more than likely caused the chain of events..hoping that the PT and trigger point injections she wants to do help me!! im SO glad i found someone here in my area that treats this!!
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helenlegs 11
- Posts: 1779
- Joined: Fri Sep 17, 2010 9:39 am
- Location: North East England
Re: 1st PT appt!!
Hope the treatment works well and that you start to feel the good effects soon 
Great that it's local.
Take care
Helen
Great that it's local.
Take care
Helen
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
Re: 1st PT appt!!
Great to hear, Mom. 
If things go well for you, I'm sure other Ohio patients would like to hear of a doc in Ohio who treats this.
Best,
Violet
If things go well for you, I'm sure other Ohio patients would like to hear of a doc in Ohio who treats this.
Best,
Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.