Health Organization for Pudendal Education

Those who were found to have ST/SS PNE entrapment in surgery, what were your symptoms pre-op? Did you have sacral pain? Did you only have perineal pain? Where was your pain exactly? Just wondering if where the entrapment is correlates to the location of symptoms. I know it will be different for everyone, but it is interesting to think about.

Thanks!

Faith, I was entrapped at the ligament grip, at alcock's, and at the falciform process. Since I was entrapped at 3 places on each side I guess it's hard to pinpoint what symptoms match which entrapment exactly but I'll post them anyway. I had perineal pain, buttock pain (piriformis), internal vaginal pain, urethral burning, persistent genital arousal syndrome, pain in my inner thighs (obturator internus), and some sacral pain (strained SI ligaments). I used to say it felt like I'd been hit with a baseball bat all through the pelvis. Does that match any of your symptoms?

Violet M wrote:Faith, I was entrapped at the ligament grip, at alcock's, and at the falciform process. Since I was entrapped at 3 places on each side I guess it's hard to pinpoint what symptoms match which entrapment exactly but I'll post them anyway. I had perineal pain, buttock pain (piriformis), internal vaginal pain, urethral burning, persistent genital arousal syndrome, pain in my inner thighs (obturator internus), and some sacral pain (strained SI ligaments). I used to say it felt like I'd been hit with a baseball bat all through the pelvis. Does that match any of your symptoms?

I would say my symptoms are mostly sacral pain, tailbone pain, pain inside the sit bones (what I think is obturator internus or the falciform process: I have trouble understanding the anatomy exactly). I of course have burning with intercourse, buttock pain (piriformis and my gluteus muscles are very tight), and rectal burning with BM's). Sometimes my pain is as high up as the lower SI joint area, but most of the time it is down at the ST ligament area. In the past I had a lot of vulvar burning (and sometimes still do), but I do think the neurontin has helped that...at least the superficial burning. I have widespread muscle tightness and pain around joints as well...I guess a result of central sensitization as I've been told.

Faith,
Now that I know I am entrapped at the SS ligament, I can post my s/s:

burning pain from coccyx to clitoris
PGAD

that about covers it. No pain over buttocks or sit bones.

cari