Health Organization for Pudendal Education

Thanks for the update. Sorry this process has been so slow for you.

Oh Ellie,
You have been such a trooper. I hope this comes through for you! Hang in there.
Janet

Thanks Janet,how are you faring at this point. ..?Hopefully will hear this week when the trial will be scheduled..it has been a very long 7 years as I am sure you can attribute to. Maybe in June or July I will have the final implant.

Ellie,
I am keeping my fingers crossed for you and hope ypu finally get some relief. I am doing fairly well PN wise but have run into a set of back luck since June 2014. I fell and through out my pelvic alignment causing SI back pain then went on a wonderful boat ride but the dock was off we tried to get back on so I jumped and pulled my quadricep. I was recovering but not fast enough for the new pain assiatent so she sent me for an mri and flared my PN causing shooting nerve pain for a few months and of course there was nothing wrong with my back on the mri because the pain is from the pelvic misalignment. On into 2015 got an 3 weeek cold so in out work and still getting better from the mri. Then my back starts having pain again over stress from my one aunt trying to find out she had sundowners syndrome and almost put her in nursing home, tough issues at work and the other aunt died. Just so you know this all is not certainly as bad as you and others are going through as I am still working but the challenges and pains do sometimes spike for me. Next up while trying to fix my back a new PT strained my quadricep on 25 Feb, I limped and then strained my shin muscle and am still trying to recover from that. I took.4 days off work when the muscle shin pain escalated 2 weekends ago but am now trying to work 1/2 days using a scooter at work to take a load off that leg. Sadly this has limited me more than my PN was. Maybe we will both be doing better in June or July. I think I have to find a way to.put my feet up.at work and probably both need to be raised so I do not through my alignment off ( I think that happened when I just raised the bad leg a few weeks ago). I will have to get the engineers at work to see if we can come up with something. Everyone at work has been great and my one co-worker gave our team Easter baskets so I have some chocolates to celebrate and just scaled dinner down to a simple meal and can mostly stay off the leg. Again that mens I am doing more than others on this site and am always greatful and wishing others will find thier way to less pain.take care and thanks for asking about me sorry so long but everyting kinda built up.
Janet