Different opinion, different Dr.
Different opinion, different Dr.
Well here it is folks, Went to Mpls.today for my appointment about the nueorstimulator implant.After all of the preliminaries, Dr.Schultz comes in to say Dr.Antalok has his own theories about pudendal nerve pain. In other words he disagreed with him. Goes on to say ,regardless we are here to treat your pain. I walked out of there with the same old feeling of not being believed. Maybe he is doing this for insurance purposes.? I do have piformus, back issues,but no stenosis. OK,I have to get a grip and let it go.
Surgery Jan.05 2011 TG with Dr Antalok. Dr.Chambi May of 2012 showed injury from a fall on back, 11 years ago. My piriformis muscle caused a large amount of fibrosis .My sciatic nerve was growing through the piriformis muscle which caused a bifid p.muscle. . Dr Chambi decompressed the sciatic,pudendal,pfcn ,and peroneal nerves. I hope to have a nuerostimulator put in to help with the sciatic pain that never goes away. Most days are better with the pudendal if I do not sit at all.
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stephanies
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Re: Different opinion, different Dr.
Did Dr. Schultz tell you he thinks the pain is not from the pudendal? Did he tell you how he will treat your pain? I am sorry you left feeling like you were not believed.
Stephanies
Stephanies
PN started 2004 from fall. Surgery with Filler Nov. 2006, Dr. Campbell April 2007. Pain decreased by 85% in 2008 (rectal and sitting pain resolved completely), pain returned in 12/13. Pain reduced significantly beginning around 11/23.
Re: Different opinion, different Dr.
Yes,they are scheduling me for the trial stimulator . He truly believes I have the pain. He thinks it somehow is connected to my back problems. I do not have sciatica, sure feels like it. The pain goes from my behind all the way down my leg and foot. I have been off of oxycontin for 7.5 months so there was no talk about opioids. I asked him if he puts a lead close to pudendal,he said yes,at the base of the spine,showed me on the chart where the pn is and where the lead goes, He goes on to say that regardless the reason,he is there to treat the pain. Lord ,I pray it will help the 50%they say it does.
Surgery Jan.05 2011 TG with Dr Antalok. Dr.Chambi May of 2012 showed injury from a fall on back, 11 years ago. My piriformis muscle caused a large amount of fibrosis .My sciatic nerve was growing through the piriformis muscle which caused a bifid p.muscle. . Dr Chambi decompressed the sciatic,pudendal,pfcn ,and peroneal nerves. I hope to have a nuerostimulator put in to help with the sciatic pain that never goes away. Most days are better with the pudendal if I do not sit at all.
Re: Different opinion, different Dr.
Hi Ell,
I'm also sorry you left your appointment not feeling believed. I wish you the very best with your trial. Are you still going for the pain pump, or do you now plan to have a permanent SCS if the trial is successful?
You know; the ones where he released your sciatic nerve from your piriformis and also your peroneal nerve? It appears he disagrees with Dr. Chambi, too.
Aside from that ... it doesn't seem this group is aware of how very stressful it is for chronic pain patients to not know what's causing their excruciating, unrelenting pain. In some cases, just having a reason can go a long ways towards rationalizing and coping. Lastly, this thought process is not helpful to anyone trying to file for disability benefits. You have to have a diagnosis. SSDI will not accept "I'm being treated for unspecified pain".
Sorry for the rant, Ellie. Please let us know when you get your appointment. I sincerely hope this works out for you.
With love and hugs,
Karyn
I'm also sorry you left your appointment not feeling believed. I wish you the very best with your trial. Are you still going for the pain pump, or do you now plan to have a permanent SCS if the trial is successful?
Who told you that?!? As we've previously discussed, sciatica doesn't necessarily have to come from your "back". Has Dr. Schulz reviewed your medical records from Dr. Chambi?river133 wrote: I do not have sciatica, sure feels like it. The pain goes from my behind all the way down my leg and foot.
You know; the ones where he released your sciatic nerve from your piriformis and also your peroneal nerve? It appears he disagrees with Dr. Chambi, too.
I'm starting to hear statements such as this more and more from the pain management community. Very disturbing. But the reality is - that's what they're there to do. Manage pain. Period. I can't help but disagree with this thought process because ... how can you know you're appropriately and efficiently treating something if you don't know what it is?river133 wrote: He goes on to say that regardless the reason,he is there to treat the pain.
Aside from that ... it doesn't seem this group is aware of how very stressful it is for chronic pain patients to not know what's causing their excruciating, unrelenting pain. In some cases, just having a reason can go a long ways towards rationalizing and coping. Lastly, this thought process is not helpful to anyone trying to file for disability benefits. You have to have a diagnosis. SSDI will not accept "I'm being treated for unspecified pain".
Sorry for the rant, Ellie. Please let us know when you get your appointment. I sincerely hope this works out for you.
With love and hugs,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Re: Different opinion, different Dr.
Oh,good to hear from you Karyn! I did ask him if he reviewed Dr.Chambi reports. He said yes he did. I go on to tell him of the nerves he decompressed. Keeps saying they put the leads in and find out from me where the buzzing helps. I know there is another word for it. When he spoke of disagreeing with Dr.Antaloks theory, I think he means the surgeries. I will question him more next time. Because I am testing emg negative for sciatic ,I specifically told him it is all of the nerves coming down from the sacrum. Dr.s are not so smart. I sure have found that out in the last 7 years.
Yes if this does not give me enough relief,I will try the pump. It will be hard to get to Mpls every month to have it filled,but believe me I will find a way.
You had your ssid denied?. undefined pain? How dare they!?. Don't they contact the Dr.s?
When I saw Dr.Schultz the 1st time,I looked at the records they requested I bring. All it was ,was emg,no sciatic, and mri normal. Isn't that a slap in the face. .? It is so depressing, I try so hard to stay positive,some days I just let it all happen.last Sun.The pain was so sharp and unrelenting I wanted to die. The next day was much better and I wanted to live again..
I am supposed to be at pt today in an hour for my balance. I have to cancel, not a good day. Maybe tomorrow.
Many hugs to you Karyn,
Yes if this does not give me enough relief,I will try the pump. It will be hard to get to Mpls every month to have it filled,but believe me I will find a way.
You had your ssid denied?. undefined pain? How dare they!?. Don't they contact the Dr.s?
When I saw Dr.Schultz the 1st time,I looked at the records they requested I bring. All it was ,was emg,no sciatic, and mri normal. Isn't that a slap in the face. .? It is so depressing, I try so hard to stay positive,some days I just let it all happen.last Sun.The pain was so sharp and unrelenting I wanted to die. The next day was much better and I wanted to live again..
I am supposed to be at pt today in an hour for my balance. I have to cancel, not a good day. Maybe tomorrow.
Many hugs to you Karyn,
Surgery Jan.05 2011 TG with Dr Antalok. Dr.Chambi May of 2012 showed injury from a fall on back, 11 years ago. My piriformis muscle caused a large amount of fibrosis .My sciatic nerve was growing through the piriformis muscle which caused a bifid p.muscle. . Dr Chambi decompressed the sciatic,pudendal,pfcn ,and peroneal nerves. I hope to have a nuerostimulator put in to help with the sciatic pain that never goes away. Most days are better with the pudendal if I do not sit at all.
Re: Different opinion, different Dr.
Oh,good to hear from you Karyn! I did ask him if he reviewed Dr.Chambi reports. He said yes he did. I go on to tell him of the nerves he decompressed. Keeps saying they put the leads in and find out from me where the buzzing helps. I know there is another word for it. When he spoke of disagreeing with Dr.Antaloks theory, I think he means the surgeries. I will question him more next time. Because I am testing emg negative for sciatic ,I specifically told him it is all of the nerves coming down from the sacrum. Dr.s are not so smart. I sure have found that out in the last 7 years.
Yes if this does not give me enough relief,I will try the pump. It will be hard to get to Mpls every month to have it filled,but believe me I will find a way.
You had your ssid denied?. undefined pain? How dare they!?. Don't they contact the Dr.s?
When I saw Dr.Schultz the 1st time,I looked at the records they requested I bring. All it was ,was emg,no sciatic, and mri normal. Isn't that a slap in the face. .? It is so depressing, I try so hard to stay positive,some days I just let it all happen.last Sun.The pain was so sharp and unrelenting I wanted to die. The next day was much better and I wanted to live again..
I am supposed to be at pt today in an hour for my balance. I have to cancel, not a good day. Maybe tomorrow.
Many hugs to you Karyn,
Yes if this does not give me enough relief,I will try the pump. It will be hard to get to Mpls every month to have it filled,but believe me I will find a way.
You had your ssid denied?. undefined pain? How dare they!?. Don't they contact the Dr.s?
When I saw Dr.Schultz the 1st time,I looked at the records they requested I bring. All it was ,was emg,no sciatic, and mri normal. Isn't that a slap in the face. .? It is so depressing, I try so hard to stay positive,some days I just let it all happen.last Sun.The pain was so sharp and unrelenting I wanted to die. The next day was much better and I wanted to live again..
I am supposed to be at pt today in an hour for my balance. I have to cancel, not a good day. Maybe tomorrow.
Many hugs to you Karyn,
Surgery Jan.05 2011 TG with Dr Antalok. Dr.Chambi May of 2012 showed injury from a fall on back, 11 years ago. My piriformis muscle caused a large amount of fibrosis .My sciatic nerve was growing through the piriformis muscle which caused a bifid p.muscle. . Dr Chambi decompressed the sciatic,pudendal,pfcn ,and peroneal nerves. I hope to have a nuerostimulator put in to help with the sciatic pain that never goes away. Most days are better with the pudendal if I do not sit at all.
Re: Different opinion, different Dr.
Ellie, I wonder if he puts it in the conus medullaris at the base of the spine. The French team published an article about success with this approach. http://www.ncbi.nlm.nih.gov/pubmed/24249588 You might want to ask him.river133 wrote:I asked him if he puts a lead close to pudendal,he said yes,at the base of the spine,showed me on the chart where the pn is and where the lead goes, He goes on to say that regardless the reason,he is there to treat the pain.
It bugs me when doctors are a bit arrogant, but if he's competent, in the end that is what really matters. Hope this works out for you, Ellie. Do you have an appointment date for the trial yet?
Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Re: Different opinion, different Dr.
No Violet,they said it takes a couple of weeks for the insurance to go through and then they will call. I have a website of Dr. Schultz containing information on his procedure.I will post it later. I am still up in bed. 
Surgery Jan.05 2011 TG with Dr Antalok. Dr.Chambi May of 2012 showed injury from a fall on back, 11 years ago. My piriformis muscle caused a large amount of fibrosis .My sciatic nerve was growing through the piriformis muscle which caused a bifid p.muscle. . Dr Chambi decompressed the sciatic,pudendal,pfcn ,and peroneal nerves. I hope to have a nuerostimulator put in to help with the sciatic pain that never goes away. Most days are better with the pudendal if I do not sit at all.
Re: Different opinion, different Dr.
Yes he does put it at the base of the spine. He showed me on the chart of spine and nerves.He is with the MAPS pain clinic .Mn.Has several if not more clinics around. I will make a copy of this Violet and bring it with,or better yet call and speak with the nurses tomorrow. No chance of speaking with him until the day of the trial. Just to make double sure. How nice it is for you to give that info. I love our moderators.
Surgery Jan.05 2011 TG with Dr Antalok. Dr.Chambi May of 2012 showed injury from a fall on back, 11 years ago. My piriformis muscle caused a large amount of fibrosis .My sciatic nerve was growing through the piriformis muscle which caused a bifid p.muscle. . Dr Chambi decompressed the sciatic,pudendal,pfcn ,and peroneal nerves. I hope to have a nuerostimulator put in to help with the sciatic pain that never goes away. Most days are better with the pudendal if I do not sit at all.
Re: Different opinion, different Dr.
Here it is Feb 19th,and still not a set date for the stim trial. The psychologist that I saw at my first visit last Oct.quit. It seems she did not leave her dictation about me. So they have hunted her down and now have the dictation. Now they have to send it off to the ins.co. and as soon as they hear from bcbs they will schedule me. I am assuming it will be in April. This place is crazy busy. I have been waiting and hoping for 7 years . I so hope this will be successful. Will keep you posted.
Surgery Jan.05 2011 TG with Dr Antalok. Dr.Chambi May of 2012 showed injury from a fall on back, 11 years ago. My piriformis muscle caused a large amount of fibrosis .My sciatic nerve was growing through the piriformis muscle which caused a bifid p.muscle. . Dr Chambi decompressed the sciatic,pudendal,pfcn ,and peroneal nerves. I hope to have a nuerostimulator put in to help with the sciatic pain that never goes away. Most days are better with the pudendal if I do not sit at all.