Health Organization for Pudendal Education

My symptoms include:

Occasional sharp pains when sitting down, can shoot up the shaft of penis.
Tightness in pudendal area when getting an erection.
The CS will partially inflate 3/4ths of the way up and then be almost flat, the glans does not fill at all, as well as the rest not inflating nearly enough.
Numbness to temperature in some spots, as well as no sensitivity at all.
Can't maintain an erection and can only get a bad one when stimulating with my hand.
I have probably overmasterbated over the years, which I do laying down.
I have no sex drive whatsoever. (I think SSRI antidepressants may have done this to me, very worried about PSSD)
Sometimes painful ejaculations because my floor is too tight, urinating and ejaculating feels very forced going through me becuase it has to push its way out. Anal muscles super tight. (I'm able to help with this by doing reverse kegels)

Viagra and Cialis do not help (or barely help) I still can't maintain well with them and they dont improve EQ
Urologist is sending me for a test on a possible veinous leak

Recently I had a workplace injury lifting something way to heavy, and really did some damage to my upper body and potentially lower body. I had physio and most of my problems in the upper body are okay but I'm wondering if I screwed up a nerve when I did it.

EDIT: I also sit on the sacrum frequently because of my bad posture. I also have pain in the sacrum/tailbone area.

I would say it is more probable that you have sever pelvic floor dysfunction than classic PNE. Of course that pudendal nerve plays one of the major roles in this havoc but is more probably not an initial culprit. Most of the CPPS suferrers do have some ED, or at least, the erection quality is lower. In most cases this is temporary. I am somehow in similar situation, when I have "remission" periods, my genital feel almost like during the "good old times", good sensitivity, morning erections etc.
When I am in flare-up mode (which could take 5-6 weeks) my general feeling of genitalia is somehow altered, pelvis is rock hard, feeling of constricted penis etc. PT and relaxation is the key and maybe some myorelaxants/transquilisers. Of course it would be good to go for all other examinations (MRI etc.).

flyer28 wrote:I would say it is more probable that you have sever pelvic floor dysfunction than classic PNE. Of course that pudendal nerve plays one of the major roles in this havoc but is more probably not an initial culprit. Most of the CPPS suferrers do have some ED, or at least, the erection quality is lower. In most cases this is temporary. I am somehow in similar situation, when I have "remission" periods, my genital feel almost like during the "good old times", good sensitivity, morning erections etc.
When I am in flare-up mode (which could take 5-6 weeks) my general feeling of genitalia is somehow altered, pelvis is rock hard, feeling of constricted penis etc. PT and relaxation is the key and maybe some myorelaxants/transquilisers. Of course it would be good to go for all other examinations (MRI etc.).

I was reading about Hard Flaccid Syndrome, which is basically a tightness in the pelvic area that compresses the dorsal nerve and gives you hard falccids ad soft glans, which could be what I'm dealing with. Would there be a chance of permanent nerve damage if this was the case, in your opinion? Like the longer I go without getting it lossened up?

No I dont think that muscle cramp/havoc can impose permanent damage to dorsal nerve. BUt the sooner you start the qualified physioterapy and relaxation techniques, the quicker your pelvis will unlock. muscular tension with many trigger points might impose a hell in the pelvis, even if pudendal nerve is not entrapped.

Hi ! I have simmillar problem , but it started to go away , because i finally found the reason for it. I did many test's and saw many doctors , but nothing helped untill i found the reason on my own. Finding the reason for your problem its simple . There are 3 steps :
1. First and easiest - check your testosterone. If its low that may cause low sensantion and low sex drive.
2. Blood vessel test - do doppler ultrasound on the penis or angiography.
3. If the first two test are negative then it means your ED is nerve releated. Then you have to find what is the cause of the nerve problem - physical(check your nervous system.Find good chiropracter to check your spine and also do xrays to see if there is a pinched nerve by bone somewhere.Muscles can pinch nerves too(in places where nerve goes under the muscle) , when they are overtensed, but the reason for their tension can be 2 - pinched nerve or some dislocation of the bones(unstable pelvis for example); chemical( if physical damage is not found , then maybe the food or drugs that you take are poisoning the nerve system and unbalancing all the hormones) ; emotional (its related to the other two and can occur with both of them. It is normal to have it when your penis is not working right . The one thing you should do is not EVER take anti dep's and sleeping pils and try to stay possitive and strong.Everyone know's that depression can cause ED , but i dont think this is the reason for yours).
Only when you find the reason you can find the solution. Drugs are not going to help you , they only do damage to your body in this case. And here are some question's from me : Do you have trouble with your sleep ? Do you have morning erections ?

I wish you good fortune

Hello, I am 33 years old and have the same symptoms that you have.
Pain in the penis, perineum, anus, burning when urinating, erectile dysfunction and I only get erections by stimulating myself but I notice the thinnest and tense penis, hard but not erection with a flat appearance and it depresses me to live like this.
I confirmed damage, neuropraxia of the pudendal nerve at the level of Alcock's canal.
I lost morning erections and the meds, Tadalafil and Sildenafil barely work.
Have you found any solution?
I've been like this for 8 months and last year it happened to me, but I had a long period of improvement.
I had it for 3 months without knowing what was happening and then it went away until this great crisis from which I cannot get out.
I leave my email, please answer me there: rodrigodeabreu25@gmail.com

I have absolutely the same after a halve year escitalopram and now nerve pain and the diagnosis CPPS .