Having PN on both sides

Many physical activites such as sports, pelvic surgery, etc can all contribute to PN
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Ikarus-70
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Joined: Sun Jul 08, 2018 5:50 pm

Having PN on both sides

Post by Ikarus-70 »

Hi,

my pain specialist said, it is uncommon to him, that patients have this kind of pain on both sides. It started with me on the left side, and pain started on the right side one year later.
There was no incidence at all, the pain grew slowly.

Does someone know if this bilaterality is a sign for a particular cause of PN?

Thanks!
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Violet M
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Re: Having PN on both sides

Post by Violet M »

What happened to me was the pain started on one side but due to pain the muscles throughout the pelvis went into spasm and I had pain all through the pelvis. But, I don't know for sure the answer to your question in your case.

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
stephanies
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Joined: Mon Oct 25, 2010 3:07 am

Re: Having PN on both sides

Post by stephanies »

Several doctors have told me that bilateral PN pain can be an indicator of pain originating at the spine. This is clearly not always the case, and may be less likely as your pain began on one side and spread, but Tarlov Cysts and tethered spinal cord, as well as other issues, can have pudendal nerve pain as a symptom. You can ask your doctor for a lumbar and sacral MRI and get a couple of opinions on the images, maybe one from a knowledgeable neurosurgeon.

Stephanies
PN started 2004 from fall. Surgery with Filler Nov. 2006, Dr. Campbell April 2007. Pain decreased by 85% in 2008 (rectal and sitting pain resolved completely), pain returned in 12/13. Pain reduced significantly beginning around 11/23.
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