Health Organization for Pudendal Education

Violet,
Thank you Violet for the Dr. Prologo interview on the homepage and for doing such a great job with it . Thank you for not forgetting PGAD patients, by asking him if he had successfully treated any patients with PGAD. I cut and pasted 2 comments Dr. Prologo offered about collecting data, that I too hope will be available in a year from now. Looks like you have your work cut out for you come next summer in follow up questions lol Again , I am sure I speak for many,when I say thank you Violet to the moon and back for this forum........and the same goes to all that contribute their comments and support to help others here at HOPE.

Dr. Prologo: Yes. We are in contact and collaborating to compile all of our data and results, including survey follow up, to answer this question. We hope to have this finished by the end of the year.

Dr. Prologo: This is another very important question. We are compiling data from 3 separate institutions using a follow up survey to get an accurate answer to this question.

Sadie

Thanks, Sadie. Maybe you could arrange a follow-up interview with him to find out the results!

Violet

i will be making an appointment with him tomorrow. Does anyone know how long it will take for scarring to happen if the pudendal nerve is compressed by the alcocks canal?

Re: Prologo Interview on Home Page
Has anyone had the procedure done that Dr. Prologo is doing - called "cryoablation" - which involves freezing the pudendal nerve? I called at one of the hospitals he works at in Emory Johns Creek Hospital in Atlanta, Georgia and they said he's still doing the procedure. I have read a couple of articles about the success of this procedure and that Dr. Prologo said the patients he has treated over the last four years are still doing well. I'm thinking about going up there (I live in South Florida) to have the procedure done. I have not found any doctors in my area that I feel comfortable with treating this.

I developed this burning in my vaginal and buttocks area everyday as a result of surgery I had to remove a growth on my left ovary. The doctor aggravated this nerve and it took four months for a true diagnosis. It was a neurologist who said it's pudendal neuralgia, but could not tell me how to treat it.

I would appreciate your comments.
Thank you,
Dorothy Z.

Hi Sedona,

No, I haven't. But, I'm looking in the UK for this procedure and can't find anyone/anywhere. I was hoping that 2+ years on we'd have an update and some details of places/consultants that do this procedure and the findings of how successful it is/isn't with patients. But, I think he's probably so busy!

Are you able to PM me or share the stories from other patients who have had this done, with me/others? It's so helpful! Thank-you!

I hope you're able to make it over to him and your procedure goes very well. Do get back to us and let us know how it goes, if you go ahead with it.

Good luck1