Health Organization for Pudendal Education

where would you go for surgery?
I live in the Uk and so far have seen many doctors. Gone to NY for Dr Potter MRI (scarring entrapment of dorsal nerve and of pudendal nerve in anococcygeal ligament). Gone to Belgium to see Beco ("serious case, you probably have had it for many years, go for sugery asap"). Have an appointment with Bautrant in a month> Not yet done blocks but cannot sit even with cushion for one minute and pain only controlled with Lyrica and amitryptiline.

I have seen that the most recommended dr is Hibner but it is difficult for me to think about surgery so far away. Who would you recommend this side of the Atlantic? I am trying to do stats of success rates based on forums comments but it's impossible!

Thank you for your suggestions and experiences

Manon,

I am so sorry you are in this dilemma. You said that your pain is "controlled by Lyrica and Amitriptyline." What do you mean by this? At what pain level does this keep you at?

What I would do is wait and see what comes of Dr. Aszmann and Dr. Hibner's meeting in Vienna. For me, personally, I would spend every last dime to go to the best doctor, insuring my best chance of getting rid of this blasted disease forever.

Why did you choose against Beco? And what are your primary symptoms?

Blessings,

A's Mommy

Hi Manon,

Have you had any consultations with either of the UK teams?

Kath

Thank you all for responding!
manon

Manon,

I only just came across your post, sorry if my message is a bit late.

I traveled from Australia to consult with Dr. Bautrant in Aix-en-Provence. I had PNE surgery there in 2007. You can read my update on success stories or on the home page by clicking on the left hand column under 'personal stories'. I had no other option but to travel to France or the USA and I'm happy with my decision to go to Dr. Bautrant. Recovery depends a lot on yourself too, by being positive, patient, and not expecting it to help overnight. it's a long, slow process to recovery and you need to be prepared for that.

Catherine

manon,
my pain is caused by the bartholin gland! did you get to see the doctor in london?

god bless