How many doctors have you been to?
How many doctors have you been to?
I was just wondering the average number of doctors most people have been to in their serach for a PN cure. My count is 10 (including my family doctor and my OBGYN). Crazy!
-11/08 vulvodynia began around conception of first & only pregnancy
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
Re: How many doctors have you been to?
I lost count... let me try to take a stab at guessing.
year one - 5
year two - 8
year three - 10
year four - 2
year five - 0 (had new baby)
year six - 5
year seven - 5
year eight - 9
so total about 44 docs for PN related issues. Wow. I want a refund.
year one - 5
year two - 8
year three - 10
year four - 2
year five - 0 (had new baby)
year six - 5
year seven - 5
year eight - 9
so total about 44 docs for PN related issues. Wow. I want a refund.
-straddle fall age 4-7 w/bleeding labia, tampons hurt in teens, papsmere started annoying pelvic 'tingling' & pne in 02
-obturator surgery w/ Filler in 05 (useless, created sciatic & plantar fascitis pain)
-TIR surgery w/ Bautrant in 08 and vestibulectomy in 08 in France (vest. removed pain w/intercourse, pain w/sitting increased post surgery)
-chronic fatigue & food allergies/migraines (gluten, milk) from pain meds in 08
-want a life back. I'm 34 w/8+ years of pain
-obturator surgery w/ Filler in 05 (useless, created sciatic & plantar fascitis pain)
-TIR surgery w/ Bautrant in 08 and vestibulectomy in 08 in France (vest. removed pain w/intercourse, pain w/sitting increased post surgery)
-chronic fatigue & food allergies/migraines (gluten, milk) from pain meds in 08
-want a life back. I'm 34 w/8+ years of pain
Re: How many doctors have you been to?
I lost count after 15 years!
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pomegranate
- Posts: 157
- Joined: Sat Sep 18, 2010 3:12 am
- Location: Oklahoma
Re: How many doctors have you been to?
I've had pelvic pain in some form or another since 2008. (This does not include years of IBS and menstrual cramps from endo).
5 MD's solely for pelvic pain. At least 2 others for related pains (back, hip).
After March, 4 PT's.
One acupuncturist, two massage therapists.
And a partridge in a pear tree.
5 MD's solely for pelvic pain. At least 2 others for related pains (back, hip).
After March, 4 PT's.
One acupuncturist, two massage therapists.
And a partridge in a pear tree.
2008: mild pelvic pain and PFD began
2009: true PN/PFD pain, two PN blocks, normal PNMLT
2010: PT and conservative management with moderate improvement in PN/PFD symptoms
2011: surgery for extensive endometriosis; arthroscopic hip surgery to repair labral tear and FAI (right hip)
2012: C-section delivery of first child
2014: arthroscopic hip surgery to repair labral tear and FAI (left hip); C-section delivery of second child
Ongoing physical therapy since 2010 for both pelvic floor and hips.
2009: true PN/PFD pain, two PN blocks, normal PNMLT
2010: PT and conservative management with moderate improvement in PN/PFD symptoms
2011: surgery for extensive endometriosis; arthroscopic hip surgery to repair labral tear and FAI (right hip)
2012: C-section delivery of first child
2014: arthroscopic hip surgery to repair labral tear and FAI (left hip); C-section delivery of second child
Ongoing physical therapy since 2010 for both pelvic floor and hips.
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GraceUnderFire
- Posts: 115
- Joined: Fri Sep 17, 2010 1:57 pm
Re: How many doctors have you been to?
Wow! I thought 13 was alot . . . but I totally agree about the refund part 
Blessings,
Grace
Blessings,
Grace
Woke screaming from ab hyst 6/08
Diagnosed w/PN, ilioinguinal & iliohypogastric neuralgias 1/09
3 PN blocks w/Dr Quesada
Rt side TIR, ilioinguinal neurectomy & vestibulectomy 5/09 Dr Conway
Left side TIR 2/10 Dr Conway
Potter MRI 9/10 and consultation w/Loretta & Dr Hibner 12/10
Bilateral ilioinguinal, iliohypogastric, genitofemoral release w/Dr. Hashemi Aug 2011 left & Sept rt
Bilateral TG surgery w/Dr. Conway will be in January 2012
Diagnosed w/PN, ilioinguinal & iliohypogastric neuralgias 1/09
3 PN blocks w/Dr Quesada
Rt side TIR, ilioinguinal neurectomy & vestibulectomy 5/09 Dr Conway
Left side TIR 2/10 Dr Conway
Potter MRI 9/10 and consultation w/Loretta & Dr Hibner 12/10
Bilateral ilioinguinal, iliohypogastric, genitofemoral release w/Dr. Hashemi Aug 2011 left & Sept rt
Bilateral TG surgery w/Dr. Conway will be in January 2012
Re: How many doctors have you been to?
This is a list of all the medical professionals I can think of I have seen over the last 3.5 years. Some physicians I have seen due to 2nd complications from my pain like my TMJ and some are for the RSD I developed in my legs. All related because I wouldn't have seen them if I hadn't developed pelvic pain. Also, I see Dr. Dellon in 3 weeks so one more to add to the list after I see him.
Urologist - 2
Pelvic Pain Specialists (Dr. Jain and Dr. Leff in NYC, Dr. Howard, Dr. Conway, Dr. Hibner) - 5
Regular Pain Specialists - 5
Anesthesiologists for nerve blocks - 3
Vascular surgeon - 1
Neurologists - 2
Podiatrist (heel pain) - 1
Medical Genetics (due to drug sensitivities) - 1
Allergist (due to drug sensitivities) - 1
ENT (TMJ due to pain I clench my jaw now) - 1
PT - 4
OT - 1
Feldenkrais PT - 1
Acupuncurist - 1
Chiropractors - 2
Massage therapist - 1
Urologist - 2
Pelvic Pain Specialists (Dr. Jain and Dr. Leff in NYC, Dr. Howard, Dr. Conway, Dr. Hibner) - 5
Regular Pain Specialists - 5
Anesthesiologists for nerve blocks - 3
Vascular surgeon - 1
Neurologists - 2
Podiatrist (heel pain) - 1
Medical Genetics (due to drug sensitivities) - 1
Allergist (due to drug sensitivities) - 1
ENT (TMJ due to pain I clench my jaw now) - 1
PT - 4
OT - 1
Feldenkrais PT - 1
Acupuncurist - 1
Chiropractors - 2
Massage therapist - 1
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
Re: How many doctors have you been to?
Over the past 8 years I have seen more than 24 different doctors in 5 different countries to try to get some answers and solutions to my Pudendal Pain.
PNE started 2003 following Vaginal Hysterectomy, pelvic floor repair and right oophorectomy; eventually after many tests had BilateralTG surgery Nantes 2004; following this tried many other treatments including 7 day epidural, ketamin infusions to no avail; Trialed and was implanted with a Neurostimulator in 2007- Dr Van Buyten Belgium, this has enabled me to manage my pain much better.
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Missingmylife42
- Posts: 101
- Joined: Sat Oct 02, 2010 1:30 am
Re: How many doctors have you been to?
25 or 30 I believe and I have lost count.
Diagnosed for PNE by Dr. Jerome Weiss in June 2007.Started PT with Amy Stein in NYC.
PT for almost 3 years now without any results.
Pudendal Nerve blocks in August,2007 by Dr. Quesda left me with sitting pain.
Unilateral TIR approach with Dr. Bautrant on 18 Febuary,2010 with no major improvements and sitting is much worse.
MRI By Dr. Potter reveals nerve entrapment in the ST,AC and DN.
Dorsal Nerve Decompression surgery on April 8,2011
Redo surgery by Dr. Hibner on July 18,2011
PT for almost 3 years now without any results.
Pudendal Nerve blocks in August,2007 by Dr. Quesda left me with sitting pain.
Unilateral TIR approach with Dr. Bautrant on 18 Febuary,2010 with no major improvements and sitting is much worse.
MRI By Dr. Potter reveals nerve entrapment in the ST,AC and DN.
Dorsal Nerve Decompression surgery on April 8,2011
Redo surgery by Dr. Hibner on July 18,2011
Re: How many doctors have you been to?
It is a shame that everyone has gone to see this many doctors and I bet that almost everyone who posted here was self diagnosed as PN and not diagnosed by a doctor. 
Take care,
Wendy
Take care,
Wendy
Unlilateral Surgery 9/27/07 - Dr. Conway
Redo Unlilateral Surgery 10/15/10 - With Dr. Hibner AND Dr. Conway
Results - Fantastic!
Redo Unlilateral Surgery 10/15/10 - With Dr. Hibner AND Dr. Conway
Results - Fantastic!