Health Organization for Pudendal Education

Those who have Fibromyalgia and PN did your PN come first or your fibromyalgia come first? Do any of you think PN could be a symptom of fibromyalgia? Just like some people with fibromyalgia have muscle trigger points that don't fully go away no matter what you do maybe a person's PN is caused by pelvic floor trigger points that compress the pudendal nerve and can't be fully released no matter what meds you take or how much PT you do? I sure hope this isn't true, but I am just thinking here. My "fibromyalgia" type symptoms came after my inability to sit and PN symptoms so I sure hope it's a result of the PN, but maybe the PN was just the precursor to my "fibromyalgia".


I found this when googling fibro symptoms: " FMS patients may experience increased frequency of urination or increased urgency to urinate, typically in the absence of a bladder infection. Women with FMS may have more painful menstrual periods or experience worsening of their FMS symptoms during this time. Conditions such as vulvar vestibulitis or vulvodynia, characterized by a painful vulvar region and painful sexual intercourse, may also develop in women."

Sure sounds a lot like PN, doesn't it? (Minus the unbearable pain with sitting part)

I know that diabetics are more likely to get neuropathy. Perhaps fibro patients are also more likely to get neuropathy... as their nerves are all flared up... and some of the symptoms I imagine would overlap to some degree. I was told that often fibro is from gluten intolerance creating malabsorption of nutrients. something to check out. test on enterolab.com for 99 bucks to see if antibodies to gluten are in your stool. my mom has fibro and her symptoms have been much better since quitting gluten.

pianogal wrote:I know that diabetics are more likely to get neuropathy. Perhaps fibro patients are also more likely to get neuropathy... as their nerves are all flared up..

Yeah, the only thing is that diabetics have diabetes first before they get neuropathy and I was trying to see if others on here with fibro and PN had fibro first or PN symptoms first. If they had fibro first then the analogy with the diabetic neuropathy would make sense, but if they didn't then it doesn't hold up. I have never heard of fibro being related to a gluten intolerence. There is still a lot of unknown about fibro, but from what I have read about it it is considered a neurological problem where the person has a heightened sensitivity to pain.

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I was diagnosed with fibromyalgia 23 years ago right after a dreadful pregnancy with toxaemia. My neuropathic pain didn't start until 9 years ago after I came off HRT. I'm not saying that caused it though. I had a very bad fall down the stairs and fell on my coccyx. Saw a PT but it was then ignored for about 6 years until one day I woke up screaming with pelvic pain. I got a diagnosis of ilioinguinal and/or hypogastric nerve entrapment back then but no one did anything. Then about 6 weeks ago I started with full blown PN.

This is interesting!
Before my (undiagnosed) pne started, I suffered fibromyalgia in my face after mega stress and some bad denterastry.
All intereasting!
Anne smith

When I did the bio-resonance earlier in the year I was told to cut out wheat(gluten) and soy products, it has resulted in an 80% reduction in bladder irritation/pain.
However it has had no effect on any of my other symptoms.