Asking for help in London

[loger2]

Hi everyone,
I'm a 25 years old guy from Spain but also a sufferer of PN which really destroyed my life. My life wasn't the best but this condition makes it worse at some point that for me having sex is just not in my mind anymore. I'm just another person that feels bad all the time and have anxiety but I was improving my condition.

My problem started two years ago when I was in my job, a job that was a hell and almost everyday I was killing my myself because they paid me badly and I got so many problems focusing in my life but some day suddenly this problem arrives and I didn't expect it because my job was sitting in a chair and I never had this kind of pain, never. But immediately my penis started to burn without no reason and I felt like my body was closing due to my problems in my job, suddenly I felt like depressing with a lot of problems in my body and I felt exhausted. Was a hell, everyday I sensed something strange in my penis and really I was thinking about the suicide, I don't know why I felt that kind of warm feeling so I visited the doctor and the doctor tried to find a solution because in all test the reality was that my prostate was perfect, no infection, no problem with any supposed prostatitis or bacteria that could be affected me. In fact, I was desperate to find something in my results because if not I read about Pudendal Nerve Entrapment and really it was really scary.

After couple of months with fear, panic, strange sensations in my penis and I decided to find a solution in a physiotherapist that she was using electrostimulation but after a few sessions I felt like I was wasting my money because she didn't give me any explanation, just the way I had to do it with her which cause me doubts so I only did 3 treatments with her and then well I was pretending to save money so I was 2 months with any treatment and I improve so Imagine the size of the pain every day without any pills. Really, it's very hard and well I'm doing my life as I usually did time ago so all this time I was working, doing some stuff, watching series, stay with friends with burning pain so imagine the situation.

My partial solution was finding an osteopath thanks that this talented man was near me in Spain so I decided to have an appointment and well he described my problem very well and really was an amazing guy who has very positive reviews and also bad reviews that he put himself on his website so 68% of the people having this problem was healed and hopefully I decided to see him. It was not very cheap, according to Spain it's very expensive but to be honest he is very knowledgeable and tries to explain everything, he diagnoses that I have pudendal nerve entrapment after all the test so I move on and I decided to take the next step and risk.

After 10 sessions my treatment finishes because I was feeling amazing, I remember the first day after the treatment how my body feels for the first time and how much I suffered without any relief. I decided to move to London so I was feeling good again without any pain or sometimes with little pain affordable thanks that I received mental training against pain so I can manage and focus in my real life. At this time I felt great but the worst thing it's the orgasm and pleasure had disappeared so I feel weak. After doing some cycling (big mistake) I felt really bad and all the pain returned but after two weeks I feel better but the most shit thing it's when I go to the toilet and the burning and humidity sensation in my glans makes me feel sad and my burning sensation in my anus after finishing it's horrible but I think I have something more like hemorrhoids or some irritation.

At the moment I can sleep without any problem, I can do almost everything without any problem but I avoid to sit in flat surfaces you know the pain appears in my coccyx so it's weird but now I feel better at that point. I have the strange sensation in my glans and some burning pain in my rectum, the relief comes when I masturbate so I feel without any pain and back to the normal life but it's strange because when I wake up after sleep I feel nothing and the same when I go to the shower so maybe it's something emotional also. But when the genital arousal comes it's a hell and everytime I have the mind focusing in the enormous flare in my glans.

I ask for help in London to fix my situation ASAP I was thinking about Michael Durtnall and Sayer but I don't know if it's gonna work because for me my pain is easy to solve. Any recommendation, any other experience with Sayer Clinics??

[Violet M]

As with pretty much every health care provider listed on this forum, there are mixed reviews of Dr. Durtnall. You can read more about him in the UK and Ireland section of the forum. Some people really like him and were helped while other people did not get excellent results. I think it is good news that you were able to get better without surgery the first time so hopefully this time you can get well again. You might be like me -- you might have to be careful the rest of your life about your activities.

Violet

[loger2]

As with pretty much every health care provider listed on this forum, there are mixed reviews of Dr. Durtnall. You can read more about him in the UK and Ireland section of the forum. Some people really like him and were helped while other people did not get excellent results. I think it is good news that you were able to get better without surgery the first time so hopefully this time you can get well again. You might be like me -- you might have to be careful the rest of your life about your activities.

Violet

Hi Violet, I want to know about other PT like Maria Elliot or Helen Kebble but I don't know what to expect. I'm so tired to be scared because really I want to have a solution, and my case isn't like the others. I'm not in an extreme suffer I can do many things even I learned how to ride a bike, always with muscle pain that I'm suffering this. I know that I will do my best but if I'm true I can be hope solved because sometimes I feel like free pain and free fire sensations.

I can do it but I really want to know what to expect about the PT in London.

[Violet M]

Sorry, I don't know much about those other PT's. You could try the UK pudendal neuralgia Facebook group to see if anyone there knows about them.

Violet