Pain with laying down ??

Missingmylife42 · Post by **Missingmylife42** » Fri Jan 21, 2011 4:02 pm

I have burning buttocks sacrum pain when laying down flat and also worse when i bend my knees up laying down flat also the clitors and on the sides of it has begun to get a constant itch to it now.. also still has that burn does any one have the same symptoms.

mom · Post by **mom** » Fri Jan 21, 2011 4:21 pm

My duaghter who is 7 has constant clitoral itch..everyday all day no matter what. She says it feels like burning, a mesquito bite, and pin pricks all together. She has had this for 2 1/2 years, her story is in the announcements and community page, under the Journey of a child.

She ithces wether she is lying down , sitting, or standing up, and it is always clitoral and around the area surrounding the clitoris.
Wish I knew what was causing it. It has definetly taken a toll on her ability to enjoy life and be around other kids.

I am wondering if the dorsal nerve has anything to do with the itch in that specific location. We have an appt with Dr. Hibner in April.
I hate that you are experiencing this but I am happy to see others have itch as we are constantly told it is OCD and she needs to see a Phsycologist.
I know your itch is intense and real I see my little angel live it everyday. Kids make fun of her. It is awful!
MOM

Missingmylife42 · Post by **Missingmylife42** » Fri Jan 21, 2011 4:46 pm

omg your poor baby.. im going to read your story.. i got this from dr antalok by giving my a 4th round of injections knowing all the other ones never made me numb thinking hes were special and he could do it, also he gave me some in my belly he hurt me.. im going to hibner in feb hoping we can reverese ehat he has done, i got mine from a hysterctomy from august 2009. im am going to read your story.. im soooo sorry :,,,,,,,,,,( my heart is broken for you.

Lernica · Post by **Lernica** » Fri Jan 21, 2011 11:34 pm

Dear Missingmylife,

When you had a hysterectomy did you remove your ovaries? If you did, the burning/itching in your vagina could be because of a lack of estrogen. Have you tried an estrogen cream or a suppository tablet? A few days of this treatment usually clears up these symptoms for me. I too have had a hysterectomy and have no ovaries.

I don't know enough about nerve blocks to respond to your other post, but please don't beat yourself up about your treatment choices. We are all new at this and we don't know what will work and what won't for each of us, until we try it. You were guided by knowledgeable doctors the whole way; you did not make your decisions on your own. Just keep thinking positive thoughts about the day in the future when you will beat this condition and live pain-free. It will happen, it's just a matter of time.

In the meantime, I would like to thank you for posting your experiences with the nerve blocks since I have yet to try one and I am being guided by the experiences of everyone on this forum, including you, as I contemplate my treatment options.

We're all thinking about you.

Lernica

Missingmylife42 · Post by **Missingmylife42** » Fri Jan 21, 2011 11:47 pm

Hi i got my ovaries just no uterus or cervix.. i want it back!!! i miss it if i knew then what i know now, yes i was guided but i have a feeling i did this to myself and me and my husband dont want surgery but my life is no life.

Violet M · Post by **Violet M** » Mon Jan 24, 2011 12:16 am

Missingmylife42 wrote:I have burning buttocks sacrum pain when laying down flat and also worse when i bend my knees up laying down flat also the clitors and on the sides of it has begun to get a constant itch to it now.. also still has that burn does any one have the same symptoms.

Yes.... I had pain in all positions and neuropathic itch. Hang in there -- you still have options. One of my blocks made me worse too but it eventually settled down.

mom · Post by **mom** » Mon Jan 31, 2011 3:14 am

what do you all do for the itch? Do you mind if I ask where your itch is isolated to?
MOM

Violet M · Post by **Violet M** » Mon Jan 31, 2011 3:32 am

mom wrote:what do you all do for the itch? Do you mind if I ask where your itch is isolated to?
MOM

Vulva area. Ice and capsaicin. Hermajesty had some recommendations on the dilution of capsaicin. I wonder if lyrica would help??? I was pretty much over the worst of PNE when it came out so I never tried it.

ezer · Post by **ezer** » Mon Jan 31, 2011 5:18 am

You can try Zonalon. It is a Doxepin cream (a tricyclic antidepressant) that relieves itching. Dr.Weiss did prescribe it to me.

http://www.medicinenet.com/doxepin-topi ... rticle.htm

wendy7 · Post by **wendy7** » Mon Jan 31, 2011 3:58 pm

Hello Mom,

I am so glad that you are persuing medical evaluations for your daughter. I so hate it when the doctors say that it is all in your head and to see a psychiatrist. What she is experiencing is very real and I'm so happy that you are advocating for her.

Take care,
Wendy

Health Organization for Pudendal Education

Pain with laying down ??

Pain with laying down ??

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