Health Organization for Pudendal Education

Hello All,
I don't post much on this forum but because of the new Dorsal Root Ganglion Simulator there is something to at least Alleviate alot of the pain symptoms from pudendal entrapment / damage. So i had a Spinal Stimulator back in 2007. It was one of the kind that hit every nerve when you have this specific pain. That old medtronic with shock my entire pelvis and to turn it up high enough to block the pain i had to turn it all the way up to level ten. That was like a electric Jackhammer.
Well i have to inform the community of what the Newest device can do. So i went in to get trial from doctor McRoberts down here in Florida. So in the test he hooked up my 2nd Lumbar nerve root and the 2nd Sacral nerve root. While i was on the table the Doc was working to connect the wires right. I didnt get any help from the 2nd lumbar but then he was working to get my right side S2 root connected. I was just saying nope i feel that in the leg or the foot or the thigh muscles. After awhile i thought dammit here is another failure. However after rotating and adjusting for awhile he made a correct millimeter movement and then the doc hit the right spot. The electric juice connected just right and the stimulator blocking signals went exactly to the right penis and down and to the anus. It was exactly where where it needed to be.

Now here is the rest of that story. With the temporary cords i was connected for a few minutes on the slab. After the procedure i rolled over once to get back onto my bed and was wheeled out to my spot. The Technician came out with me and was going to do the adjusting of the device. So when i just sit up once. When she turned the machine on the 2nd Sacral root the wire had slipped off and was just hitting the leg nerves again.. She say that Dr Roberts says when they go into do the permeate device they will be able to lock the wire down onto the root correctly. The Lumbar DRG root are much easier to position. Sacrals not so easy.

There is my new news to the Pudendal Community. There is a Stimulator that can send the Vibrating electrical signals directly between the pudendal entrapment pain and the brain. It can treat the symptoms. Canceling out some of the pain with it's blocking signals.
John Carter,,,,

Well, this is the most hopefully you have sounded in a long time, John. Just hoping and praying they can get this device installed for you soon.

Thanks for posting this. It sounds very promising.

Violet

This new technology is the closest thing to apply a counter effect to all the specific pain that everyone here plea for some kind of help.

I found this out after I got down here to Florida and started looking for help. What I have always said is that I have been looking for something that could treat my 4th lumbar nerve root. I have the same story i have told doctors for almost a decade. So I tell this to Dr Ahmed. He said wait here a minute and then came back with a printed page of a Dr Deer in west Virginia. This Dr deer is the freaking president of neurological treatments basically. Ahmed knew Deer actually. I'll link in that page later. So it is about DRG treatment. So lots of people are getting some miracles by this specific nerve root treatment.

Once again like I said many times before I had my L4 blocked with lidocaine. I had not had that done in 4 years after I just gave up after my 3rd pudendal surgery. He used as very small dose. But for a hour I was cured...

The DRG treatment is brand new and for example only 5 or 6 drs in Florida have been doings it for 6 months now. I searched and found the handful of drs that are here. I have a choice between 2 versions now. Dr mcrobert's device is internal with a battery that will last 7 years with no recharging. So I just tried it. I was wishing that it could replicate what root injections could do. No luck there yet. However when I had the L4 hooked up I could feel the couple of muscles in my pelvis that cause my entrapment being tweak tweak tweaked. I was hoping that some frequency could shut down those muscles not just shock them. I told the doctors that the old stimulators were horrible and I didn't want that. They said that no they are completely different and don't do that anymore. LIES. But they can be specific now.

I have a lot to say but am just trying to inform all us suffers what's the new treatment on the block. How I was saying what can be done to the S2 is the happenstance discovery to me trying to get a specific thing done.

The intricate stimulation of the S2 and it's sensory effect of blocking all the different pudendal torture pains can be a lifeline to all the people here that are begging for any relief they can get. This treats the symptoms. And can maybe give us ppl some time to look and hold out for treatments of the actual entrapment.

Sincerely John Carter.

Here is a link that spells out exactly what the DRG Stimulator is and does.

http://www.neuromodulation.com/drg

Timothy Deer, MD, FIPP
President, International Neuromodulation Society

this is el presidente

Thank you John Carter. I appreciate your post about the DRG. I live in Florida and I am going for the DRG trial this Thursday October 5th, 2017. I plan to post after I have worn the temporary for a few days. I will have the temporary 8 days until the 13th. I need some help so badly.


Peace to you,

Gretel

Gretel, I hope you get some relief from this therapy. I would be interested to hear how the trial goes for you.

Violet

Gretel, I just completed the 5 day DRG trial. It was a huge success. I have had huge pain when sitting for 14 years.

The minute I woke up from the minor surgery to install the device, I could sit comfortably. They put leads on S2 and S3. My pain is on only one side.

I hope many others try this wonderful breakthrough. I have my life back again.

Great news, Kit!

Hello, My name is Marianne I have had PN for 6 years. I have tried everything meds, lifestyle change, PT, blocks and dry needling, Botox . I was entrapped had the decompression surgery and got freed. That was July 2017,unfortunately it made me worse. I tried more blocks then 2 amniotic allografts. Nothing is working. I am trying to get a dorsal Root ganglion spinal cord stimulator. My insurance Cigna has denied me twice , saying it is investigational treatment. My doctor is filing an appeal I need to know how u get insurance to cover this. My pain has me homebound can only b up 20 minutes at a time. Please help.