PNE Question
Posted: Thu Mar 23, 2017 1:36 am
Hi all,
In 2007 I was diagnosed with PNE and had unilateral surgery in Nantes done by Pr Robert. I used to frequent the Tipnna forum.
After a very difficult recovery I felt pretty good for 3 months, almost free of that excruciating pain.
I started to get a slight pain on the right when I sat again.
The pain was not the stabbing and gnawing entrapment pain I experienced prior to surgery. But with prolonged sitting the burning pain got progressively worse. I started to get those grueling pains coming once again.
I consulted with Dr. Hibner that offered a redo surgery in 2010.
The recovery was easier this time but the pudendal pain never got better. I have stopped sitting by and large both because the pain is insufferable and because I feel like the nerve is entrapped again and may get damaged irreversibly.
I have regular pelvic floor physical therapy which helps some but cannot afford it more than once a month.
I am pretty desperate. Should I be assessed again and try for another pudendal surgery?
My quandary is, which doctor? I am in SoCal.
Thanks for any answers.
-d
In 2007 I was diagnosed with PNE and had unilateral surgery in Nantes done by Pr Robert. I used to frequent the Tipnna forum.
After a very difficult recovery I felt pretty good for 3 months, almost free of that excruciating pain.
I started to get a slight pain on the right when I sat again.
The pain was not the stabbing and gnawing entrapment pain I experienced prior to surgery. But with prolonged sitting the burning pain got progressively worse. I started to get those grueling pains coming once again.
I consulted with Dr. Hibner that offered a redo surgery in 2010.
The recovery was easier this time but the pudendal pain never got better. I have stopped sitting by and large both because the pain is insufferable and because I feel like the nerve is entrapped again and may get damaged irreversibly.
I have regular pelvic floor physical therapy which helps some but cannot afford it more than once a month.
I am pretty desperate. Should I be assessed again and try for another pudendal surgery?
My quandary is, which doctor? I am in SoCal.
Thanks for any answers.
-d