Health Organization for Pudendal Education

Got a question:-

Do you think that your PN pain is worse some how when your period arrives or during certain times of your mentral cycle?

I find it dificult to tell as I don't have periods anymore (used Mirena for 10 year), am 53 and propably going the the change of life as well, so I'm confused, but I wonder if my flare ups could be linked?

What experiences have others had which may help me to figure this one out?

Thanks
Peaches

Peaches,

I have certainly found a correlation between my periods and my pain flares. I typically get progressively worse a couple days leading up to my period and then throughout, which all total can be about 7 days.

I describe my pain during this period as a raw achy feeling and the zaps I experience are much more frequent. On average I get 15 zaps in a day normally, during my period I estimate that I probably get double that number.


Hope this helps,

Krista

you could track your flares on a calendar and see if they are running in monthly cycles...I have minor flares during that time of the months and before I had PN, I had interstitial cystitis flares at that same time. I don't understand the physiology behind it but since women with no pathology often get period cramps, isn't pelvic muscular tension increased during menstruation (?)

I definitely get flare ups. I need to get on a pill that stops my periods asap. Not for birth control of course...

Peaches, increased pain at certain times of the month have been a very common complaint of women with PN over the years that I've been on the forums. Mine was always worst just before and at the beginning of my period.

Yep. Pain increases as period nears and then during. My fibromyalgia symptoms also increases cyclically.

Emily B.

Just adding my experiences, my periods are really interlinked with my PN issues. The pain (used to be) much worse just before and during my period. I also used to get bleeding between periods. Since I've had the nerve blocks and successful neuromodulation my periods are vitrually pain free (rather than crippling like before) and also I have much lighter periods and no bleeding in between. I think PN and period link isn't well known or acknowledged.

Jenny,

I'm happy the nerve blocks have seemed to work for you!!! Where did you have them done? Since you're new to the site, mind me asking what caused your PN?

Best wishes for a speedy healing,

A's Mommy

Oh yes! I personally think hormones and PN pain are closely related. There are for me at least. My pain all started with major hormonal changes in my life (pregnancy, breastfeeding and return of periods). I have pain sometimes from ovulation until my period starts. Why I don't understand. I think there is increased venous dilitation during ovulation and just before your period which puts extra pressure on the muscles and pudendal nerve I think. I think it's pelvic congestion.

jennyp wrote:Since I've had the nerve blocks and successful neuromodulation my periods are vitrually pain free

I'd like to know more about your neuromodulation jennyp if you would share. Also what your pain is like in general now. Can you sit/function on a day to day basis?

Thanks for the queries RE: neuromodulation. I've posted my experiences on the "New person" forum under my original post for those that are interested.