Page 1 of 1

New to group and frustrated beyond belief!

Posted: Thu Mar 17, 2016 6:49 pm
by Bluebird24
I don't know where to begin my story...

I've been battling many health problems for yrs now. I have epilepsy, and panic disorder. I take topamax, celexa, and Xanax for those issues.
The past few months my body has taken a turn for the worst. Some days I am bed ridden, I can feel my joints and bones all over just aching. I have sores and ulcers in my mouth , hair loss, constant fevers. But I would take all that any day over what is going on "down town"!

When things in my body flared up, I had this ...I don't know how to describe it without sounding sexual... A constant feeling of climaxing in my clitoral area. I thought...ok, I'll try to "scratch the itch and fix it myself" IT DID NOT STOP!! I had an old tube of lidocane cream and rubbed it on the outside Just to get some rest... Didn't help . now it has begun to throb internally as well.
I don't know what to do anymore! I feel like I'm standing on the edge of a cliff 24/7.
I have multiple ice packs bc that seems to be the only reliefe I get from this pain. I sleep with them between my legs at night just to catch some sleep. Now I have burns from ice on my inner thighs.
I don't know why this is happening. Or what it is... This is the first group that gave me a sense of hope.

It's so embarassing to talk about to anyone. I'm 32 and told my mother. We went to the er and they looked at me as if I was crazy. Asked me about crazy sex toys...humiliating!

I know my post is allover the place and in so sorry. I'm typing this on my phone.

The only way I describe it to my bestfriend is that my vagina is Pac man . its constantly spasming. Like if I was climaxing or having an orgasm.

Thank you all so much for reading this. Again I'm sorry if it's a rambling mess.

Re: New to group and frustrated beyond belief!

Posted: Thu Mar 17, 2016 9:11 pm
by janetm2
Welcome Bluebird,
So very sorry you are having such issues! Please search for PGAD in the upper right corner for Persistent Genital Arousal Disorder (there is a long thread about it) and also off the home page are newsletters and the June2013 letter is all about PGAD. You may want to put a towel around the ice pack to buffer your skin. You are not crazy or alone. Good Luck.
Janet

Re: New to group and frustrated beyond belief!

Posted: Thu Mar 17, 2016 9:43 pm
by Bluebird24
Thank you so much, Janet .

Re: New to group and frustrated beyond belief!

Posted: Fri Mar 18, 2016 5:06 am
by Violet M
Hi Bluebird. I responded to you on page 54 of this thread. http://www.pudendalhope.info/forum/view ... &start=530

Violet