Health Organization for Pudendal Education

Hey guys

name is anisha and im from leicester.
I came across this site as i was looking for reasons why i have pelvic pain.
I will try and be as thorough as possible in this message and hope to gain some opinions.

So 4 weeks ago i was intimate with my partner and upon penetration my vulva started to hurt. The pain subsided.
Within 2 weeks i started feeling this dull cramping sensation, vulva pain frequent urination and thought it was my period however this was not the case.
Within days i was finding it difficult sitting down and my tailbone started to hurt,i saw a gynaecologist who said it could be vulvadynia . I did a lot of research before i visited the gyno and I suspected she would say vulvadynia. Im not experiencing any burning( yet) however 2 days ago I noticed that my legs were very jelly like and my arms feel very numb and jelly like,im finding it hard to grip things without effort. Today im gettin pain down my left leg like its cramping
I rang the nhs and they advised me to see a gp and get tested for vitamin deficiency and get an mri for possible nerve damage.

I understand ive only been experiencing my symptoms for not long my im determined to rule out pn as i already feel i may have symptoms which could get worse. I havent undergone any surgery however i feel my possible reasons for getting pn could be from a fall i had a few months ago or weight lifting at the gym

Ive spoken to a few others who have recommended that i get some physical therapy and get my pelvic floors examined

My questions are:

1) do ppl with pn experience any neurological issues?
2) what can i do so prevent my symptoms from getting worse?
3)does pelvic floor dysfunction have the same symptons as pne?

Im really scared and worried a the moment, the ache is constant and my weakness in hands and arms are scary. A lot of people have suffered from years before getting proper help and im so scared i will be in this vicious circle of going from practicioner to practicioner looking for help.

Any support or help would be appreciated xx

Hi..... Just saying I am in the UK and I run a secret FB group if you want to chat to other UK PNers who can pass on info regards what specialists we have in the UK which isn't a lot , but it's a great page for support with someone nearly always there, this site is great also but it's good to be on UK time. There are a 127 of us so far.

Anisha, I'm sorry you are going through this experience. I think it's important for you to go through the process your physician is recommending including the MRI before drawing any conclusions. Most people with pudendal neuralgia don't have the accompanying symptoms of the arms and legs that you are describing so I think it's important for your physician to rule out other possibilities such as multiple sclerosis, etc. which it sounds like they are probably doing with the MRI. My physician had me take an MRI in order to rule that out in the early stages. Also they will want to rule out any spinal cord issues that could be contributing to your symptoms.

In the meantime it would make sense to be evaluated by a pelvic floor PT for tension of the muscles, or tenderness along the course of the pudendal nerve, as well as any musculskeletal anomalies such as sacroiliac joint dysfunction and pelvic misalignment. Pelvic floor dysfunction can have many of the same symptoms as PN because if the muscles are tense, they can impinge on the nerve and cause the same symptoms.

It's hard to say for sure how you can prevent the symptoms from getting worse until you have a more definite diagnosis. If it's related to weightlifting, obviously you want to give that a rest.

Violet