Well... What next?
Posted: Tue Jul 28, 2015 2:24 am
I posted on here about 10 months ago when I first started having problems. Had only been at uni three weeks and after a sexual encounter (my penis hurt at the time, not sure why possibly a bad move?) I felt a constant urge to urinate.
This constant urge to urinate did stop, but was replaced by pain and discomfort when sitting. I also started leaking a small amount of urine constantly, but much more when sitting. I went to a lot of doctors and they covered most ground, my prostate is apparently fine and no std's.
I saw a urologist that said everything seems fine and gave me a diagnoses of chronic pelvic pain syndrome, but I kinda felt like that was a bit of a cop out, although it was nice to finally get a diagnosis. I remember I asked him if it could possibly be pudendal neuralgia and he pretty much said it's very rare and there's pretty much nothing you could do about it anyway (not helpful).
I then saw a neurologist privately who seemed like the first person to actually take me seriously. He agreed that my symptoms were likely to be neurological and gave me mri's to rule out more sinister conditions like ms. He then pretty much said he had no idea, however my symptoms do seem very similar to a few cyclists that he treated with pn. He then said he knew someone that could give me a pudendal nerve emg, however it was complex so do it if things don't improve.
Does this seem like the right thing to do? What exactly is a pudendal nerve emg? At the moment my symptoms are pain when sitting (incredibly annoying since my uni course is a computing course) leaking a small amount of urine constantly, that 'foreign object in rectum' feeling and pain on one side of penis occasionally after masturbating.
I remember once I fell over (from barely any height at all) and had a worsening in symptoms for ages. I feel like this again points to the nerve being irritated and me irritating it more.
At this moment in life I am fairly happy, even though I have a definitely decrease in quality of life. I kinda wanna keep it that way so any ideas of possible treatments or advice on coping would be brilliant! I'm only 19 so this does make me more than a bit worried about my future...
Thanks for reading!
This constant urge to urinate did stop, but was replaced by pain and discomfort when sitting. I also started leaking a small amount of urine constantly, but much more when sitting. I went to a lot of doctors and they covered most ground, my prostate is apparently fine and no std's.
I saw a urologist that said everything seems fine and gave me a diagnoses of chronic pelvic pain syndrome, but I kinda felt like that was a bit of a cop out, although it was nice to finally get a diagnosis. I remember I asked him if it could possibly be pudendal neuralgia and he pretty much said it's very rare and there's pretty much nothing you could do about it anyway (not helpful).
I then saw a neurologist privately who seemed like the first person to actually take me seriously. He agreed that my symptoms were likely to be neurological and gave me mri's to rule out more sinister conditions like ms. He then pretty much said he had no idea, however my symptoms do seem very similar to a few cyclists that he treated with pn. He then said he knew someone that could give me a pudendal nerve emg, however it was complex so do it if things don't improve.
Does this seem like the right thing to do? What exactly is a pudendal nerve emg? At the moment my symptoms are pain when sitting (incredibly annoying since my uni course is a computing course) leaking a small amount of urine constantly, that 'foreign object in rectum' feeling and pain on one side of penis occasionally after masturbating.
I remember once I fell over (from barely any height at all) and had a worsening in symptoms for ages. I feel like this again points to the nerve being irritated and me irritating it more.
At this moment in life I am fairly happy, even though I have a definitely decrease in quality of life. I kinda wanna keep it that way so any ideas of possible treatments or advice on coping would be brilliant! I'm only 19 so this does make me more than a bit worried about my future...
Thanks for reading!