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We need to spread the word-we need help

Posted: Mon Feb 23, 2015 11:50 pm
by jaxi123
Who in our nations Capitol can we contact to complain about the lack of medical knowledge, lack of successful treatment, the difficulty involved ingest tin disability, etc????

We can send man to the moon but there is no pain relief for PNE. Makes no sense int 21st century.

Re: We need to spread the word-we need help

Posted: Tue Feb 24, 2015 4:47 am
by Violet M
Your congress person maybe?

Re: We need to spread the word-we need help

Posted: Thu Feb 26, 2015 10:10 pm
by jaxi123
Yes I contacted my congress woman and she said there was nothing she could do!

Re: We need to spread the word-we need help

Posted: Fri Feb 27, 2015 11:35 pm
by Patty
We need someone famous to get this and who would be willing to go public.

Re: We need to spread the word-we need help

Posted: Sun Mar 01, 2015 9:34 am
by Aussie-m
Yes it would ideal to get someone famous to get the word out , I can't see it happening , So the next best thing is we live in a tec savvy world now , can some of you tec savvy people get the message out there that way ???? :idea:

Re: We need to spread the word-we need help

Posted: Sun Mar 01, 2015 5:28 pm
by ezer
Disability is a separate issue but regarding research, chronic pain is a very difficult problem in general. Be it back pain, neck pain, or pelvic pain. It is not that there is some conspiracy to let us suffer.

Re: We need to spread the word-we need help

Posted: Sun Mar 01, 2015 6:34 pm
by stephanies
I agree there is not a consipracy of any kind to let people suffer, I simply think many of us would simply like to see an increase in research (and research $$) put into chronic pain/neuropathic pain to help find more effective treatments.