Reading upside down !!!

Here is a place for social chats with special attention to support and non medical discussions. We need a place to chill out, where we can distract from our pain and enjoy lighter moments, share a joke or funny moment with others.
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calluna
Posts: 1058
Joined: Mon Sep 27, 2010 11:57 pm

Re: Reading upside down !!!

Post by calluna »

Sunil, I am so sorry this happened to you, and I can hear how unhappy it made you, but I am confused - is this recent? I thought things were going better for you now?

Something that crossed my mind - I don't know whether you've had the opportunity to see a psychologist for help with pain management? - I know how much I have been helped by my sessions with a psychologist, she really turned things around for me. A problem like ours has both physical aspects and psychological ones, as does any chronic pain condition, and help can - and should - come from both directions.

I use many of the CBT techniques that she taught me, every day. Without this, I wouldn't be functioning nearly as well as I am. And I know I can go back to see her again, if I need to - this is a good thing to know, that the support is always going to be there. I would wish the same for you.
pianogal
Posts: 437
Joined: Mon Sep 20, 2010 2:11 am
Location: Orange County, CA

Re: Reading upside down !!!

Post by pianogal »

wow, that is heinous!

I want to go punch them out!

you are so right... you have to do your own research and guide them to get them to do what you want them to do... the idiots with egos who know nothing are too ashamed to admit it...

I am so sorry you went through that... angry you went through it. people should be better humans than this.

thank God for the experts, the internet, research, and community! and God's Grace guiding us when we are lost beyond belief.
-straddle fall age 4-7 w/bleeding labia, tampons hurt in teens, papsmere started annoying pelvic 'tingling' & pne in 02
-obturator surgery w/ Filler in 05 (useless, created sciatic & plantar fascitis pain)
-TIR surgery w/ Bautrant in 08 and vestibulectomy in 08 in France (vest. removed pain w/intercourse, pain w/sitting increased post surgery)
-chronic fatigue & food allergies/migraines (gluten, milk) from pain meds in 08
-want a life back. I'm 34 w/8+ years of pain
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A's Mommy
Posts: 447
Joined: Fri Sep 17, 2010 12:46 pm
Location: Pennsylvania
Contact:

Re: Reading upside down !!!

Post by A's Mommy »

Sunil,

Your story about the urologist giving you Lithium was heartbreaking. WHAT A QUACK!!!

I'm so sorry.

There indeed are doctors out there that care about their patients. They are VERY few and far between, however.

That's why HOPE is here, so we can help each other find them all!

You are in Australia, correct? Have you seen Prof. Vaincaille? I have heard he is very interested in PNE. Please excuse me if you have already been to him.

Best luck,

A's Mommy
Daughter grew completely on left side of pelvis
Multiple uterine surgeries to fix uterine adhesions, septum, and endo
Had all the conservative workups done, 3Tesla (Potter), recovering from L sided TG (Hibner) 11/10, Botox 6/11 failed, bilateral anterior PNE decompression (distal Alcock's/perineal branch), Aszmann, Vienna, 10/11; dx'd with CRPS Type 2, 12/11, Ketamine @ CCF 2/12, doing 75% better PRAISE JESUS!
http://fighting-pne.blogspot.com
http://www.thepelvicmessenger.org
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