Health Organization for Pudendal Education

To everyone in their struggle with PN... I was diagnoised 4 yrs. ago and going through major life changes like most of you on the Board. I hope I can make it through the storm. I would love to find support and friends.
Level 10 pain reduced to 9 with norco 7.5/325 yeah the norco isnt working out...

I wish eveyone well and good health soon.

Sandalwood, it sounds like you are really struggling right now with high pain levels. Sorry to hear you have been going through this for so long. I would be interested to hear more of your story if you don't mind telling it.

Sending you a big hug of support back.

Violet

Hi SandalwoodSprings

Welcome and a big hug back. Goodness knows we all could use some understanding and comfort. Have you ever tried Neurontin or any of those type drugs for pain? Oddly, the most pain relief I've achieved was when I first started Wellbutrin but then it wore off. What is causing my pain is not fully clear yet, though; not sure it's pudendal for me.

<3 Sandal

Lily

Hey Violet M

PN has caused me so much pain in the past 16 years due to a botched delivery which was a nightmare. I was diagnosed 4 years ago, at least I now know what was causing all this havoc in my body and i'm not the hypochondriac as the doctors thought I was. So now finding a doctor that is aware of PN and pain management hasn't been a successful journey, no one knows what it is I always get this strange look and what precedes is always the predictable... "Whats that?!" Not much luck yet until now one of the ladies said that I should check out The Stanford Clinic in Northern California and another lady suggested Dr. Prager @ UCLA, UCLA is a lot closer so i will give his office a call on Monday!

Hey, Rainday

I'm very sensitive to SSRI, SSNI, and TCA plus i didn't find any pain relief from them, but I do hope I can find something that will work and a doctor whose not afraid to help me reduce my pain level.

Sorry it took a while to post i was in a car accident last week and yeah not good. I wish both you ladies well!!!

Sandalwood, good luck if you get an appt. with Dr. Prager. There are women I know of who developed PNE from childbirth who are doing very well now after getting the right treatments so hopefully you will too. They've moved on with their lives and aren't on the forum anymore. There are some excellent PT's in the Southern California area who are listed on the pudendalhope.org website (left hand menu). You may want to ask for a referral to one of them if you haven't tried PT for pudendal neuralgia yet.

Take care,

Violet