Health Organization for Pudendal Education

Hi everyone,
I am having my first MRI done soon. Can someone let me know if their MRI showed issues with the nerve? My neurologist just started me on Gralise and it has been working for the pain but is giving me headaches. The Dr. couldn't believe I've never had an MRI and had a hysterectomy, and my previous Dr. gave me a week trial of the InterStim without doing an MRI! I just don't know who to trust in the medical system anymore.

My MRI's didn't show anything with the nerve but 3T MRI's with special settings to enhance nerves weren't available at the time. My understanding is that regular MRI's won't show the pudendal nerves. I don't know if there are any places near you that use software to enhance the nerves such as the 3T MRI using Dr. Hollis Potter's protocol or the MRN (magnetic resonance neurography).

Good luck. I would be interested to hear how it turns out for you.

Violet

Hi there,

Sorry to hear you are in pain - but this is definetly a good place to read through and find out about all the specific options we have available to us.

I know with MRIs that - like Violet said - given they cost so much - make sure that the person doing the MRI knows how to look specifically for the pudendal nerve. Have you connected up with a nerve pain clinic? They usually have preferred MRI specialists that they work with so be sure that you don't just go to any old place.

The management and treatment of pelvic nerve pain is still embryonic - so sadly there is a fair bit of trial and error we have to go through.

Remember as well that you can have pelvic nerve pain and still nothing will show up on the MRI......

Have you had any luck with medications? Lyrica and Endep/Amitriptyline are the first general meds patients with nerve pain are told to trial.

I started taking Ibuprofen today which has lowered my pain which is nice. But we all know that there can be grace periods with these meds so who knows what I'll be saying in a week . I have a TENS machine.....is that what the InterStim trial feels like?

Speak soon. x