Health Organization for Pudendal Education

Hi Sunil I am sorry you are having a bad day...it is very early here and I woke up a couple of hours ago in serious withdrawl as I am weaning off tramadol and pushed it a little too fast...so we can feel bleh together.
I agree this is tough on relationships. Don't exacerbate the situation with worry...If Peter Dornan was able to eliminate your symptoms after 35 years you are not going to sustain permanent damage by waiting another month.
I don't know what exercises Peter gave you but I can tell you that the reason Jerry Hesch has had success with brief S-I treatment is because of the physics concept that low load, long duration actually imparts more force and change than more load over less time: With that in mind, if Peter has you doing stretches but not sustaining them for at least 2 to 5 minutes might I suggest you set a timer and drag them out over a longer period of time, and see what this does for your symptoms? Never do this with a forced stretch / straining but just go to a comfortable end point and keep it longer than you usually would. Peter obviously already has you doing corrections in a therapeutic direction so adding time might really help.
Regarding regretting the past and stressing about the future: It was my understanding that you were staying in some kind of religious community when getting treatment by Peter and I had never heard you so positive, even before you actually started treatment. Are you hooked in with a religious community at home? I find that so important to sustain me; I know we are of different faiths but to me if I don't regularly get my butt out to church and Bible study I don't have the fuel I need. Sunil sorry I don't even know the name of your faith so i don't know whether to tell you get out to "church" or "temple" or what; but I hoping you are staying plugged into worship as a routine in your life. All the best to you.

You were done wrong, no way to sugar coat that.
I don't think it is really possible or necessary for those of us with long term disability to know what "normal" is. I self managed interstitial cystitis for over 20 years feeling totally fine and happy with my life at a level that was "my normal". I was perfectly aware that another person transported into my body would not feel normal at all. But I was not in pain as long as I made compensations, and the compensations became habitual, so to me it was fine. The key is to get to the level that you are satisfied with your function and pain control, that is "normal" enough. Actually it does not take long at all to forget what normal is: I have pictures of me only 5 years ago in tight jeans and I just can't believe I could ever wear such a thing! So 5 years or 35 years, the point is to keep fighting this thing until you feel good, not "normal" whatever that is.
Sunil your life has not been taken away from you, you are still alive. I hope you don't waste the future regretting the past. I grew up in a very bad situation and when I was grown I walked away saying I was not going to make an 18 year sentence into a life sentence. So I did not become an adult screw-up like so many abused kids do. You don't have to make your 35 year sentence into a life sentence either. You are getting better, from what I can tell you have a good woman standing by you, and you can make what you want of the years you have left. You have said you love kids and regret not having any: I was a foster parent, maybe this is something for you to consider as your health improves. I don't know how it is in Australia but here there are many more children than there are people who will take good care of them. There is both foster care and "special needs adoption", "special needs" meaning any child who is hard to place: either babies with a disability or any child at all over 2, or siblings they want to keep together. I hope you find a better way to use the time left, than to spend it regretting the past.

HerMajesty wrote: I don't think it is really possible or necessary for those of us with long term disability to know what "normal" is. I self managed interstitial cystitis for over 20 years feeling totally fine and happy with my life at a level that was "my normal". I was perfectly aware that another person transported into my body would not feel normal at all. But I was not in pain as long as I made compensations, and the compensations became habitual, so to me it was fine. The key is to get to the level that you are satisfied with your function and pain control, that is "normal" enough. Actually it does not take long at all to forget what normal is: I have pictures of me only 5 years ago in tight jeans and I just can't believe I could ever wear such a thing! So 5 years or 35 years, the point is to keep fighting this thing until you feel good, not "normal" whatever that is.

Spot on HerMajesty, this is our 'normal', and we make the best of it we can. You have found someone to help you Sunil in Peter Dornan's treatment, try to keep your focus on that, but don't wish your life away until your next treatment next year.
I must admit I that it is hard and I was doing the same thing, as I have an appointment on 30th January which just seems far too far away. Then I realised I was wishing the whole of mine and my loved ones forthcoming festivities away too, so instead I am concentrating on making the holidays as fantastic as they can be for everyone.
I hope that you are having a better day today Sunil, try to concentrate on the good things that you have in your life now.
Take care
Helen

Hi Sunil,
As you so rightly say 'I won hands down' so there is fantastic possitive outcome you can take hold of and concentrate on, along with the treatment you are receiving.
Take care
Helen

Sunil,

You bring up God a lot; not being familiar with your faith I just have a couple of questions because based on my faith I find your point of view very confusing.

1. You say life is a one way street and that yours was robbed from you; but do you believe this life is all there is and afterwards you cease to exist?

2. You say these people got away with what they did to you but do you believe that God when all is said and done is Judge and brings ultimate justice?

I am not trying to start a religious debate I just know the beliefs that the soul is eternal and that God evens things up, are tenets of MOST religions and if they are tenets of yours, I think this is something for you to ponder.

Sunil, I was asking if YOU believe in ultimate justice, not if I do.

I would appreciate if you would stop bashing my religion though, which I was not born into, being born a Jew and raised an atheist. So I am in it because I love Jesus and since I don't trash your God whom I don't know jack about, please do not trash my God whom you don't know jack about.

I live in a so called "Christian Nation" too: All that means is that people feel very comfortable calling themselves Christians because there is no persecution /no consequences for doing so. So they just call themselves "Christian" because their ancestors were Christian. In a country where there is persecution of Christians, people only call themselves Christian because they are willing to give everything even their life to show the love of Christ. But in a "Christian Nation", people with the blackest hearts call themselves Christian just because it makes them part of the majority. So don't believe everything you hear. Jesus washes away the sins of true believers and true believers are truly repentant. I don not think a "Christian Nation" is a good thing as it causes the most disgusting misrepresentations of Christ.

The concept of washing away sin comes from the belief that since God is holy and perfect, He cannot be approached by a sinner and we are all sinners even if we have only one sin. So by taking on the guilt for our sins Jesus removes the divide between God and man and allows God to dwell literally within believers in the form of the Holy Spirit. The evidence of this is that people change their ways; the Spirit empowers us to overcome areas of weakness including hatred and cruelty. So washing away sin does not mean that somebody can do evil to you with confidence because he will know he won't have a consequence.

This is what Jesus said in the Book of Matthew:

34 “Then the King will say to those on his right, ‘Come, you who are blessed by my Father; take your inheritance, the kingdom prepared for you since the creation of the world. 35 For I was hungry and you gave me something to eat, I was thirsty and you gave me something to drink, I was a stranger and you invited me in, 36 I needed clothes and you clothed me, I was sick and you looked after me, I was in prison and you came to visit me.’

37 “Then the righteous will answer him, ‘Lord, when did we see you hungry and feed you, or thirsty and give you something to drink? 38 When did we see you a stranger and invite you in, or needing clothes and clothe you? 39 When did we see you sick or in prison and go to visit you?’

40 “The King will reply, ‘Truly I tell you, whatever you did for one of the least of these brothers and sisters of mine, you did for me.’

41 “Then he will say to those on his left, ‘Depart from me, you who are cursed, into the eternal fire prepared for the devil and his angels. 42 For I was hungry and you gave me nothing to eat, I was thirsty and you gave me nothing to drink, 43 I was a stranger and you did not invite me in, I needed clothes and you did not clothe me, I was sick and in prison and you did not look after me.’

44 “They also will answer, ‘Lord, when did we see you hungry or thirsty or a stranger or needing clothes or sick or in prison, and did not help you?’

45 “He will reply, ‘Truly I tell you, whatever you did not do for one of the least of these, you did not do for me.’

sunil wrote: I hope you have a good day .. Sunil

Well I just woke up any you said nice things; that means so far it has been a good day Have a good one yourself Sunil.

BTW hell is not "punishment" as in a Divine Spanking; hell is what is left when there is separation from God. Hell was certainly not designed for human beings, the verse above indicates who it was designed for. Unfortunately that doesn't mean human beings don't end up there.

sunil wrote:Hell is here on Earth if we do not follow God.

Or if you have PN. A lot of the time I feel like my life is a living hell!