A look at the vulva nerves including pudendal

Hysterectomy, Ovary Removal, SIJD, Piriformis Syndrome etc
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mary jane
Posts: 130
Joined: Sun Nov 03, 2013 4:13 pm
Location: uk

A look at the vulva nerves including pudendal

Post by mary jane »

Found this photo online on the pelvicsurgery website. For me, my pain started in the ilioinguinal area in the mons pubis, then just spread everywhereeee with parasthesias.
Who else can relate to this whole picture?? there is like a minefield of nerves there!!!

Image
tiny bartholin infection triggered vulvar nerve pain.
Diagnosed vulvodynia Sept '13 (no burning but electric shocks, paresthesia, aching, buzzing)
Feb 14- Taking 50 mg Ami/Elavil
May 14-pain free with 50 mg Amitriptyline and 300 mg Pregabalin. Back to normal
Dec 15- weaned off all medication, pain free, wearing skinny jeans
April 17- pain returned, Amitriptyline 50 mg. Something doesn't make sense in my diagnosis.
Currently treating depression and anxiety
nyt
Posts: 1165
Joined: Sun Oct 31, 2010 3:24 am

Re: A look at the vulva nerves including pudendal

Post by nyt »

It really brings home the point of how difficult it can be to narrow down a diagnosis. If one nerve is damaged there are other nerves that cover the same area and then the damaged nerve recruits the other nerves into the pain pattern to make the field of pain larger.
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
mary jane
Posts: 130
Joined: Sun Nov 03, 2013 4:13 pm
Location: uk

Re: A look at the vulva nerves including pudendal

Post by mary jane »

yes indeed, however I'm printing this for my future doctors and explaining on the drawing where it hurts...I SWEAR I have ilioinguinal neuropathy plus genitofemoral plus pudendal ..I still do no understand why they don't regenerate if they are indeed damaged...but not once did I hear a doctor say "oh your pain started in the mons pubis, that means this and that".
UK brags to have a great system like the NHS, honestly, all they have is some GPs who prescribe PARACETAMOL all day long and just get in your way, since you usually need a specialist to see you, who is a REAL doctor...
tiny bartholin infection triggered vulvar nerve pain.
Diagnosed vulvodynia Sept '13 (no burning but electric shocks, paresthesia, aching, buzzing)
Feb 14- Taking 50 mg Ami/Elavil
May 14-pain free with 50 mg Amitriptyline and 300 mg Pregabalin. Back to normal
Dec 15- weaned off all medication, pain free, wearing skinny jeans
April 17- pain returned, Amitriptyline 50 mg. Something doesn't make sense in my diagnosis.
Currently treating depression and anxiety
Lernica
Posts: 960
Joined: Fri Jan 14, 2011 10:31 pm

Re: A look at the vulva nerves including pudendal

Post by Lernica »

This is a great diagram! Would it be possible to post it on our Anatomy page?
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
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Violet M
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Location: United States
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Re: A look at the vulva nerves including pudendal

Post by Violet M »

Mary Jane, can you post a link to where you found the picture?

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
mary jane
Posts: 130
Joined: Sun Nov 03, 2013 4:13 pm
Location: uk

Re: A look at the vulva nerves including pudendal

Post by mary jane »

hi everyone,

sorry I reply so late, I don't know how to turn on email notifications :(

anyway, found it on this website here: http://www.atlasofpelvicsurgery.com/1Vu ... sec10.html

it was shown under a link for cortisol injections (sometimes used in vulvodynia as well) ...I also know of another girl who got alcohol injections to her vulval nerves for pain and it worked for her....
tiny bartholin infection triggered vulvar nerve pain.
Diagnosed vulvodynia Sept '13 (no burning but electric shocks, paresthesia, aching, buzzing)
Feb 14- Taking 50 mg Ami/Elavil
May 14-pain free with 50 mg Amitriptyline and 300 mg Pregabalin. Back to normal
Dec 15- weaned off all medication, pain free, wearing skinny jeans
April 17- pain returned, Amitriptyline 50 mg. Something doesn't make sense in my diagnosis.
Currently treating depression and anxiety
mary jane
Posts: 130
Joined: Sun Nov 03, 2013 4:13 pm
Location: uk

Re: A look at the vulva nerves including pudendal

Post by mary jane »

there's a similar drawing here, I must say I can't remember which link it was exactly

http://www.atlasofpelvicsurgery.com/1Vu ... 1sec9.html
tiny bartholin infection triggered vulvar nerve pain.
Diagnosed vulvodynia Sept '13 (no burning but electric shocks, paresthesia, aching, buzzing)
Feb 14- Taking 50 mg Ami/Elavil
May 14-pain free with 50 mg Amitriptyline and 300 mg Pregabalin. Back to normal
Dec 15- weaned off all medication, pain free, wearing skinny jeans
April 17- pain returned, Amitriptyline 50 mg. Something doesn't make sense in my diagnosis.
Currently treating depression and anxiety
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