Health Organization for Pudendal Education

I have developed PNE after a surgery on my sciatic nerve and piriformis muscle.
My foot was paralyzed from sciatic nerve entrapment. Surgery done by Dr. Dellon.
I had a lumbar fusion 6 weeks later to relieve incapacitating back pain. This surgery
was also successful. Both surgeries were about 1 year ago. I was recovering and doing
a lot of walking. Just when I was starting to get my life back the new pain began. It was initially behind my left ischial tuberosity. Dr Hibner and others feel it is scar tissue on pudendal nerve.
I have tried meds, pelvic PT for months, nerve blocks and Botox and I have become progressively worse. I live on live on ice and use my TENS unit constantly. I am scheduled for Dr. Kenneth Peters surgery pending insurance approval. The pain has spread all around down there.
I am also consulting with Dr Prager. I am desparate to get my life back. This condition is so cruel.

Welcome and nice to meet you Rugby,
So sorry it is under these circumstances. You seem to be covering the steps to treat yourself and with PNE surgery is sometimes the only way to get out from under the entrapment. I see you have already had some surgeries and glad to hear they were successful and hope your success continues. This condition is certainly tougher than I could have imagined, even 2.5 years post surgery and trying to get by and even do a few things. I have to stop PT but still have acupuncture to rely on. PT said they would keep me a few more days until I see the colon rectal surgeon about a cyst next to my anus. Last time I went with a problem in that area the exam too the pelvic muscles spasms into overdrive and PT was my only chance at calming them. My primary said the only way to get rid of the cyst is surgery but I am afraid of anything near my Pudendal nerve! I guess I will just have to see and maybe I do not have to do anything and the warm baths will just calm it down. I will be thinking of you and hoping the best for you to get your life back!! Take Care.
Janet