scar tissue

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quilter
Posts: 70
Joined: Wed Mar 09, 2011 10:27 pm

scar tissue

Post by quilter »

Are any of the PN surgeons doing something more or different than Dr. Hibner to help prevent new scarring around the nerve after decompression? He's using the NeuaGen Nerve Sleeve and PRP. It's a fact of life that you develop scar tissue after an injury or surgery. So many of us underwent PN decompression and did well for awhile, only to be back at square one later due to scarring on the nerve with no new injury or anatomical problems. I'm feeling reasonably confident that cleaning it out again will improve my pain as it did the first time, but I'm also scared of repeating this cycle.

Are there any medications or nutritional tools to take before and after surgery to help decrease scarring?
Acute left vag/rectal pain 1999 lowering into chair. Dx 2006 with PNE/VV by PTs, Dr. Garcia, Weiss, Hibner. Many shots. PNMLT: left PN barely fuctional. Left TIG by Dr. Hibner 2007 (ST lig). 75% improved 1 year postop, slow decline. Pelvic floor Botox 2010. Left sacral SCS 2011 after good trial; removed 2012 due to NEW left S2 & rectal pain, bowel freq. Re-do left TIG by Dr. H & 5-day ketamine 2013; 1-1/2 years postop 70% improved. New post-SCS Sx are worse than PN Sx.
Ray P.
Posts: 248
Joined: Mon Sep 20, 2010 5:22 pm

Re: scar tissue

Post by Ray P. »

My second surgery was 7 hours. Most of that time was cleaning out scar tissue from first. No improvement.
velmartd
Posts: 37
Joined: Sat Sep 07, 2013 4:52 pm

Re: scar tissue

Post by velmartd »

Ray - Who did your surgery ? Did you have any improvement right after the surgery, before the scar tissue grew back ? How long have you had your PN issue ?
Mine has been one year, and I have internal pelvic PT, 2 Injections, and now they want to do botox ? I not sure botox will help, have you had botox ?
Well, this a very difficult illness to deal with, and impacts, you and your family...
flyer28
Posts: 244
Joined: Fri Mar 25, 2011 11:29 am

Re: scar tissue

Post by flyer28 »

From what I read before this was the main problem of dorsal nerve decompression, after initial success many of patients fell back into pain circle becuase of additional scarring.
I think the successful cases are those where the neurosurgeon left some space for scarring without risk to entrap the nerv again. The risk is that the scarring process is highly individual, some people are lucky enough to move on without much scar tissue some not.
TG approach is more prone to other risks, I would say.
summer 2009 - episodic post ejaculatory pain,
early 2010- major flare-up, chronification
february 2011 - ESCW wave. major flare-up, lasting 5 months
february 2012 - diagnosed CPPS with irritation of pudendal nerve, hypog. plexus block
june 2012 - dorsal nerve block, no relief
2013 - starting PT with moderate results
2014-2017 better periods interchanging with heavy flare ups
2018 first long remission (several months)
2019-2023 most of the time almost assymptomatic with cca 2 flare ups yearly
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