I'm new here and I am really scared..
Posted: Sun Sep 01, 2013 7:53 pm
I am really scared about my current situation and really don't know where to turn or how to proceed next, in order to best investigate what is currently going on with me. I appologize in advance for the long post.
I went in July to a pelvic pain clinic for help in managing my PFD, pain with intercourse, and IC pain. I had not been formally diagnosed with any other disorders prior to this visit. I could walk, sit, and ride in the car with no pain. I had a series of exams over a 2 day period and on the second day, the doctor told me that I had Vulvodynia and Vestibulitis. He diagnosed that with the dreaded Q-tip test. He then told me that he recommended I get a pudendal nerve block to help with my pelvic pain. I was already in so much pain from the internal exam he just did, and the q-tip test that I couldn't think clearly. My husband was with me and saw how much pain I was in, and never questioned this doctor. (I might add, that these were done in a regular doctor office with no imaging and no consent was ever signed explaining the procedure to me.) So, he just said to me "OK, take a deep breath" and proceeded to give me the first injection into the pudendal nerve via my vagina. I thought I was going to pass out. He then did another one right after that internally and proceeded to give me a bladder instillation when finished. These blocks contained a steroid and a numbing agent. They also took cultures to check for any infections.I was also started on the Nuva-ring(for suspected endo), and a cream.
I immediately had severe feelings of pain in my vaginal area after these blocks. I thought it was the nuva ring and took it out. It didn't stop. I then thought it was the cream and stopped it. The pain didn't stop. I called the office and told the nurse practitioner and she told me I had BV, so I thought once it clears up it will stop. It didn't stop hurting. I went back 2 weeks later and he did another block with marcaine in the pudendal nerve, and did a ileoinguinal block on the right side near my hip. No anesthesia, right in his office. I thought I was again going to pass out. The pain didn't go away with these blocks. I go back 2 weeks later and he does a bilateral pudendal block with steroid and marcaine vaginally, and a bilateral ileoinguinal block with no anesthesia or pain medicine. I told him it hurt a lot. He said it usually does, but it will get better. It got worse. I can't sit without severe pain and numbness in my butt and groin. I get electric shocks at times in the perenium area that I never had before I went down there. I never had pudendal nerve pain before, and now I have it constant. What kind of testing or doctor is appropriate to see to have this "new" pain evaluated? Sorry for the long post. I'm just at a loss andreally quite frightened.
I went in July to a pelvic pain clinic for help in managing my PFD, pain with intercourse, and IC pain. I had not been formally diagnosed with any other disorders prior to this visit. I could walk, sit, and ride in the car with no pain. I had a series of exams over a 2 day period and on the second day, the doctor told me that I had Vulvodynia and Vestibulitis. He diagnosed that with the dreaded Q-tip test. He then told me that he recommended I get a pudendal nerve block to help with my pelvic pain. I was already in so much pain from the internal exam he just did, and the q-tip test that I couldn't think clearly. My husband was with me and saw how much pain I was in, and never questioned this doctor. (I might add, that these were done in a regular doctor office with no imaging and no consent was ever signed explaining the procedure to me.) So, he just said to me "OK, take a deep breath" and proceeded to give me the first injection into the pudendal nerve via my vagina. I thought I was going to pass out. He then did another one right after that internally and proceeded to give me a bladder instillation when finished. These blocks contained a steroid and a numbing agent. They also took cultures to check for any infections.I was also started on the Nuva-ring(for suspected endo), and a cream.
I immediately had severe feelings of pain in my vaginal area after these blocks. I thought it was the nuva ring and took it out. It didn't stop. I then thought it was the cream and stopped it. The pain didn't stop. I called the office and told the nurse practitioner and she told me I had BV, so I thought once it clears up it will stop. It didn't stop hurting. I went back 2 weeks later and he did another block with marcaine in the pudendal nerve, and did a ileoinguinal block on the right side near my hip. No anesthesia, right in his office. I thought I was again going to pass out. The pain didn't go away with these blocks. I go back 2 weeks later and he does a bilateral pudendal block with steroid and marcaine vaginally, and a bilateral ileoinguinal block with no anesthesia or pain medicine. I told him it hurt a lot. He said it usually does, but it will get better. It got worse. I can't sit without severe pain and numbness in my butt and groin. I get electric shocks at times in the perenium area that I never had before I went down there. I never had pudendal nerve pain before, and now I have it constant. What kind of testing or doctor is appropriate to see to have this "new" pain evaluated? Sorry for the long post. I'm just at a loss andreally quite frightened.