Health Organization for Pudendal Education

Has anyone had pudendal nerve decompression surgery? Thank you!

I have. Did you have some questions about it?

Violet

Thank you so much for replying. Would you say your surgery was successful? Did your pain level decrease significantly? Did you have the transgluteal approach? Anxious to hear answers!

Hi Nat,
Welcome to HOPE. I'm also a surgical patient who benefitted. It may be helpful to browse our surgery section of the forum to learn what others experiences have been.
You may also find helpful information in SUCCESS STORIES, as well as our home page to view individual stories about some of our members.
We're glad you found us and are happy to answer any questions you may have.
Kind regards,
Karyn

Hi I also had Transglutel left decompression surgery and my pain has decreased significantly.
Janet

Natwie wrote:Thank you so much for replying. Would you say your surgery was successful? Did your pain level decrease significantly? Did you have the transgluteal approach? Anxious to hear answers!

I had TIR approach from Bautrant and my surgery was very successful. Off all medications now, back to work, can sit for hours, exercising again, pain level rarely above a 0-1.

That doesn't mean I think everyone should have surgery. I think it's a last resort and before going into it you should try conservative therapies first and have an accurate diagnosis.

Violet

Hi Violet,

I have just started having injections into the Pudendal nerve, but am in so much pain although there was a brief window of painlessness (5 mins) but I am due to have another one soon on either side. My pain is realy bad and wa made worse when I had a colonoscopy. I want to go through surgery and it sounds like it worked very well for you but the finances are dire as is the pain. The NHS in United Kingdom do not pay for this surgery. Did you have it France? Would you mind if I asked how much it cost?
I am is such a desperate state.

Kind regards Shirley

Shirley, the cost from Dr. Bautrant was about 6000 euros but that was almost 9 years ago and since then it has gone up some. That included all of the medical costs - hospital, anesthesia, etc. If you have to pay for it yourself and money is an issue I have heard it is cheapest to have the surgery from Prof. Robert in France.

There are people who have gotten the NHS to pay for surgery from Robert but I don't know -- things might have changed and it may be impossible now. Judy Birch on the UK pelvic pain forum might know.

Violet