The Pelvic rehab girls are asking for silly/dreadful/rude/stupid/wrong diagnosis (you get the picture) comments that have been made to us by the medical profession in our search for a proper diagnosis that did make sense. Your chance to vent!
Here is the link
http://www.pelvicpainrehab.com/blog/201 ... ment-34371
A chance to vent!
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helenlegs 11
- Posts: 1779
- Joined: Fri Sep 17, 2010 9:39 am
- Location: North East England
A chance to vent!
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
Re: A chance to vent!
This is great, Helen - thanks so much for sharing! 
I'd like to post some of the "unprofessional" comments I've received from the medical community over the years. I need to whittle them down to pick the best ones.
Best,
Karyn
I'd like to post some of the "unprofessional" comments I've received from the medical community over the years. I need to whittle them down to pick the best ones.
Best,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
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HerMajesty
- Posts: 1134
- Joined: Sat Sep 18, 2010 12:41 am
- Location: North Las Vegas, Nevada
Re: A chance to vent!
sooooo many hard to narrow it down...Has anybody ever thought of writing to the worst of those dr's just to say, "BTW, I am sure you don't remember me, but this is what I came in with, this is what you said, and here is the serious pathology I actually had...now please don't do it again" (??) I have fantasized about it but so far have found better uses of my time.
I think this is the guy I remember the most, from way back in my uninsured days: Since I have spinal pathology which causes whole body neuropathies I actually started with neuropathic itch in my fingers and toes, and thought it was nail fungus. So i went to get checked out for that and the Dr. looks at me for a tenth of a second and says, "psychosomatic due to stress". I said, "But I am not stressed. I am a very happy and laid back person". So he says, real combative-like, "well, what do you do for a living?" - Waiting for the "stressful profession"...and I said, "I'm not even working, I stay home with my kids", so he says, "Well, that can be VERY stressful". $100 cash, please, bye bye
I think this is the guy I remember the most, from way back in my uninsured days: Since I have spinal pathology which causes whole body neuropathies I actually started with neuropathic itch in my fingers and toes, and thought it was nail fungus. So i went to get checked out for that and the Dr. looks at me for a tenth of a second and says, "psychosomatic due to stress". I said, "But I am not stressed. I am a very happy and laid back person". So he says, real combative-like, "well, what do you do for a living?" - Waiting for the "stressful profession"...and I said, "I'm not even working, I stay home with my kids", so he says, "Well, that can be VERY stressful". $100 cash, please, bye bye
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.