Hi everyone,
I spoke with the appointment desk today, trying to find out the answers to some of my questions regarding getting an MRI with Dr. Potter. I'm definitely going to go and have the MRI done, planning to fly to NY mid-January.
Being absentminded, I forgot to ask how long it takes to get an appointment. Does anybody here know? I'm trying to plan when to have my doctor fax over the request. She did mention that once they receive the request, I call to make the appointment. I wonder if I can request an appointment so far in advance?
Any help would be appreciated.
Krista
*I forgot to ask: Do I have to specify that Dr. Potter read the MRI? I'm certain Ali knows...
Dr. Potter
Dr. Potter
Pain started suddenly April 2010.
3T MRI w/ Dr. Potter, January 2011 shows bilateral impingement of the dorsal nerve of the clitoris.
Unsure what to do next because my pelvis is a mess.
3T MRI w/ Dr. Potter, January 2011 shows bilateral impingement of the dorsal nerve of the clitoris.
Unsure what to do next because my pelvis is a mess.
Re: Dr. Potter
Hi KC17,
To my knowledge,the average time is two weeks.But I am sure the radiology department will be able to accomodate you.Make sure that it is reviewed by Dr. Potter and is included in your doctor's script.
The script is as follows.
Hollis G. Potter, MD Chief, Magnetic Resonance Imaging Hospital for Special Surgery Professor of Radiology Weill Medical College of Cornell University
The address is as follows.
Hospital for Special Surgery
Magnetic Resonance Imaging
535 East 70th Street, New York NY 10021
Basement level
Appointment Desk
Tel 212-774-7296
Fax 212-774-7295
The script should be as follows.
MRI of the Pelvis
Bilateral Pudendal nerve
1) From ischial spine to Sacro Spinal ligament beneath Sacrotuberous ligament and to the Alcock's canal.
2) Dorsal Nerve of the Clitoris or Penis especially passing through the Pubic bone.
To be reviewed by Dr. Hollis Potter:Please have it faxed to 212-774-7295 by your doctor.
and then call MRI department at 212-774-7296 to schedule an appointment.
--------------------------------------------------------------------------------
All the best,
Ali
To my knowledge,the average time is two weeks.But I am sure the radiology department will be able to accomodate you.Make sure that it is reviewed by Dr. Potter and is included in your doctor's script.
The script is as follows.
Hollis G. Potter, MD Chief, Magnetic Resonance Imaging Hospital for Special Surgery Professor of Radiology Weill Medical College of Cornell University
The address is as follows.
Hospital for Special Surgery
Magnetic Resonance Imaging
535 East 70th Street, New York NY 10021
Basement level
Appointment Desk
Tel 212-774-7296
Fax 212-774-7295
The script should be as follows.
MRI of the Pelvis
Bilateral Pudendal nerve
1) From ischial spine to Sacro Spinal ligament beneath Sacrotuberous ligament and to the Alcock's canal.
2) Dorsal Nerve of the Clitoris or Penis especially passing through the Pubic bone.
To be reviewed by Dr. Hollis Potter:Please have it faxed to 212-774-7295 by your doctor.
and then call MRI department at 212-774-7296 to schedule an appointment.
--------------------------------------------------------------------------------
All the best,
Ali
Diagnosed for PNE by Dr. Jerome Weiss in June 2007.Started PT with Amy Stein in NYC.
PT for almost 3 years now without any results.
Pudendal Nerve blocks in August,2007 by Dr. Quesda left me with sitting pain.
Unilateral TIR approach with Dr. Bautrant on 18 Febuary,2010 with no major improvements and sitting is much worse.
MRI By Dr. Potter reveals nerve entrapment in the ST,AC and DN.
Dorsal Nerve Decompression surgery on April 8,2011
Redo surgery by Dr. Hibner on July 18,2011
PT for almost 3 years now without any results.
Pudendal Nerve blocks in August,2007 by Dr. Quesda left me with sitting pain.
Unilateral TIR approach with Dr. Bautrant on 18 Febuary,2010 with no major improvements and sitting is much worse.
MRI By Dr. Potter reveals nerve entrapment in the ST,AC and DN.
Dorsal Nerve Decompression surgery on April 8,2011
Redo surgery by Dr. Hibner on July 18,2011
Re: Dr. Potter
Hi Krista,
I went to NYC for the MRI at the beginning of September. They wanted to give me an appointment for the following week!
Unless something has drastically changed (like a PN Stampeed! ), wait time is under 2 weeks.
Best wishes with your MRI!
Warm regards,
Karyn
I went to NYC for the MRI at the beginning of September. They wanted to give me an appointment for the following week!
Unless something has drastically changed (like a PN Stampeed! ), wait time is under 2 weeks.
Best wishes with your MRI!
Warm regards,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Re: Dr. Potter
Thank you Ali and Karyn, you have both been very helpful.
And Karyn, you gave me a good chuckle. Since getting PN, I haven't moved very fast anywhere so the thought of a stampede of us PN'ers is quite the thought indeed!
Krista
And Karyn, you gave me a good chuckle. Since getting PN, I haven't moved very fast anywhere so the thought of a stampede of us PN'ers is quite the thought indeed!
Krista
Pain started suddenly April 2010.
3T MRI w/ Dr. Potter, January 2011 shows bilateral impingement of the dorsal nerve of the clitoris.
Unsure what to do next because my pelvis is a mess.
3T MRI w/ Dr. Potter, January 2011 shows bilateral impingement of the dorsal nerve of the clitoris.
Unsure what to do next because my pelvis is a mess.
Re: Dr. Potter
Oh, I know it! Anyone offering us an appointment in under 8 weeks is just shocking!KC17 wrote:Since getting PN, I haven't moved very fast anywhere so the thought of a stampede of us PN'ers is quite the thought indeed!
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Re: Dr. Potter
Hi everyone,
I'm typing from my phone so please forgive me for any typos. I'm currently in my hotel in new York having received my MRI today. Finally the day came! I just wanted to report how lovely the hospital is and how nice the staff there is.
I am staying down the road 8 blocks at the bently hotel and it is really nice and very convienent. It has of course been snowing all day and that is the only bad thing I can say regarding making an appointment for this time of year. The ice and snow makes me feel very uneasy on my feet and I can't imagine what a slip and fall might do to me. Walking around so carefully and up and down the hills has sent me into one of my worst flares in a couple months (my right side is now acting up horribly).
Anyway, now on to the waiting game. I'll be sure to post my results when I get them
Krista
I'm typing from my phone so please forgive me for any typos. I'm currently in my hotel in new York having received my MRI today. Finally the day came! I just wanted to report how lovely the hospital is and how nice the staff there is.
I am staying down the road 8 blocks at the bently hotel and it is really nice and very convienent. It has of course been snowing all day and that is the only bad thing I can say regarding making an appointment for this time of year. The ice and snow makes me feel very uneasy on my feet and I can't imagine what a slip and fall might do to me. Walking around so carefully and up and down the hills has sent me into one of my worst flares in a couple months (my right side is now acting up horribly).
Anyway, now on to the waiting game. I'll be sure to post my results when I get them
Krista
Pain started suddenly April 2010.
3T MRI w/ Dr. Potter, January 2011 shows bilateral impingement of the dorsal nerve of the clitoris.
Unsure what to do next because my pelvis is a mess.
3T MRI w/ Dr. Potter, January 2011 shows bilateral impingement of the dorsal nerve of the clitoris.
Unsure what to do next because my pelvis is a mess.
Re: Dr. Potter
Hi Krista!
I'm glad you made it to NYC and thanks so much for checking in with us. Yes, snow and ice is much more scary when you're already unsteady on your feet.
Were able to meet with Dr. Potter? I wasn't one of the lucky ones who got to speak with her, but I did get my report in like 3 days. Not bad!
The traveling (sitting/walking) was brutal for me, too and it took almost a week for me to recover from it. Hopefully, your flare won't last that long. Looking forward to hearing about your results. You must feel relieved it's over with!
Warm regards,
Karyn
I'm glad you made it to NYC and thanks so much for checking in with us. Yes, snow and ice is much more scary when you're already unsteady on your feet.
Were able to meet with Dr. Potter? I wasn't one of the lucky ones who got to speak with her, but I did get my report in like 3 days. Not bad!
The traveling (sitting/walking) was brutal for me, too and it took almost a week for me to recover from it. Hopefully, your flare won't last that long. Looking forward to hearing about your results. You must feel relieved it's over with!
Warm regards,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Re: Dr. Potter
Hi Karyn!
Unfortunately I wasn't lucky enough to meet with her as she does not work on Fridays. Did you request a copy of your results be mailed to your house? If so, 3 days is quite fast! I figure with snail mail it will take a while, and the ladies at my primary care doctor won't let me touch a copy of the faxed results without a followup which isn't for a while. Waiting! It's horrible but will be so worth it if the results are favorable. I just keep hoping it's something minor and very treatable.
Hugs,
Krista
Unfortunately I wasn't lucky enough to meet with her as she does not work on Fridays. Did you request a copy of your results be mailed to your house? If so, 3 days is quite fast! I figure with snail mail it will take a while, and the ladies at my primary care doctor won't let me touch a copy of the faxed results without a followup which isn't for a while. Waiting! It's horrible but will be so worth it if the results are favorable. I just keep hoping it's something minor and very treatable.
Hugs,
Krista
Pain started suddenly April 2010.
3T MRI w/ Dr. Potter, January 2011 shows bilateral impingement of the dorsal nerve of the clitoris.
Unsure what to do next because my pelvis is a mess.
3T MRI w/ Dr. Potter, January 2011 shows bilateral impingement of the dorsal nerve of the clitoris.
Unsure what to do next because my pelvis is a mess.
Re: Dr. Potter
Hi Krista,
Nope. I didn't get to speak with Dr. Potter, either. But I'm so glad I made the trip and got the MRI done! Yes, I paid the $75 and had a copy of the report mailed to me. Did you request a copy mailed to you? Which one of your doctors wrote the script? When's you next appointment?
I'm with you in hoping it's something minor and treatable! But at least you'll have some kind of answer and that in itself can be a huge relief!
Hugs,
Karyn
Nope. I didn't get to speak with Dr. Potter, either. But I'm so glad I made the trip and got the MRI done! Yes, I paid the $75 and had a copy of the report mailed to me. Did you request a copy mailed to you? Which one of your doctors wrote the script? When's you next appointment?
I'm with you in hoping it's something minor and treatable! But at least you'll have some kind of answer and that in itself can be a huge relief!
Hugs,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Re: Dr. Potter
Karyn,
Yes, I did request a copy of the report to be mailed to me. It was my primary care doctor who wrote the script and although he is wonderful and suggested that it may indeed be the pudendal nerve because he knew that it innervated that area, he really has no knowledge of the condition. Nonetheless, he is very compassionate and willing to try anything so that helps. At least he doesn't make me feel like it's all in my head.
Hugs,
Krista
Yes, I did request a copy of the report to be mailed to me. It was my primary care doctor who wrote the script and although he is wonderful and suggested that it may indeed be the pudendal nerve because he knew that it innervated that area, he really has no knowledge of the condition. Nonetheless, he is very compassionate and willing to try anything so that helps. At least he doesn't make me feel like it's all in my head.
Hugs,
Krista
Pain started suddenly April 2010.
3T MRI w/ Dr. Potter, January 2011 shows bilateral impingement of the dorsal nerve of the clitoris.
Unsure what to do next because my pelvis is a mess.
3T MRI w/ Dr. Potter, January 2011 shows bilateral impingement of the dorsal nerve of the clitoris.
Unsure what to do next because my pelvis is a mess.