Health Organization for Pudendal Education

I talked to the nurse at the pain clinic today. I asked her about the generic botox. She said the person here that told you that was wrong. She said I will be seeing the Dr at my next appointment and we will discuss freezing the pudendal nerve, I said really? And may I ask how long does this last. She told me about a year. She said they have helped pudendal patients. . :: my question ,have any of you heard of this .Should I stay away from this?

I AM CURIOUS

I would suggest a second opinion, as well as further questioning of the doctor who offered the procedure, to make sure this is safe for nerves with dual sensory / motor functions. Without pudendal nerve motor function you would lose bowel and bladder control. I have heard of freezing used to "deaden" a painful sensory nerve. My instinct is that if it were that simple for pudendal pain, more of our pudendal specialists would be doing it. I don't have a definitive answer, but my alarm bells are going off about what would happen to motor function.

Must agree with HM Ellie.
CRYONEUROLYSIS
Cryoneurolysis is the freezing of a peripheral nerve to obtain analgesia. This is performed with the use of a cryoprobe connected to a cryoneurolysis machine that also allows for nerve stimulation to help target the nerve. Once the probe is in place, a small ice ball forms at the tip. This provides an analgesic effect that lasts for weeks to months without damaging the frozen structures. Nerves that respond well to freezing include the ilioinguinal nerves, intercostal nerves, and occipital nerves.

As HM mentioned, motor functions of the nerve would be effected with this procedure, which isn't what anyone would want!!. Check out what they do mean with this procedure, please.
Helen x

Helen, a different nurse called me back. It is exactly what you said, the crynolasis.. I read your post to her.. she said well you are reading something off of the internet and you do not know what this is.. I said but I do know , and I need to know if your clinic deals with pudendal nerve.. wel we deal with all nerves... make a long story short, she did not know anything about pudendal , she was going to have the Dr call back.. I have not heard.. he may have to look up pne. So so much for that pain clinic.... The steroid shots I had for the sciatic did nothing... I am off of the oxycontin... took me about 4 months, but I did it.. I have a huge flare today, I have only been off for 4 days now and my family is thrilled.... I need to find something else to relax the nerves... valium? or relax me..

Hi Ell,
I've got to stand with Helen and HM. Please don't do this.

helenlegs 11 wrote:Nerves that respond well to freezing include the ilioinguinal nerves, intercostal nerves, and occipital nerves.

The PN doesn't fall into these catagories. Are you sure their intent was to target the PN and not another nerve?
I thought there was a thread here somewhere about cryoablation/cryoneurolosis. From what I can remember, the procedure was very painful and ineffective.
Huge congrats about getting off the oxy! Valium seems to work very well for most of us.
Love,
Karyn

What disturbes me the most is that the nurses, other staff,was telling me that they deal with pudendal. I have no clue how they do it.. When I was on the table waiting for the steroid shots, I mentioned to the nurse, does anyone deal with pudendal pain here, the guy said sure we do, it is a generic of botox. The Dr. gives injections... Well I was very mislead... I in no way was going to let them do something to me that was harmful.... It is a very fancy , beuatiful clinic... From now on I will ask many questions before hand.Thank you Karyn, Helen , I always trust your judgement.. Ellie

river133 wrote:Helen, a different nurse called me back. It is exactly what you said, the crynolasis.. I read your post to her.. she said well you are reading something off of the internet and you do not know what this is.. I said but I do know , and I need to know if your clinic deals with pudendal nerve.. wel we deal with all nerves... make a long story short, she did not know anything about pudendal , she was going to have the Dr call back.. I have not heard.. he may have to look up pne.

Did you ever get a call back, Ellie? Maybe there's been some kind of misunderstanding or miscommunication? I don't know why they would be targeting your PN ....
Hugs,
Karyn

Karyn,what I was asking ,was about the botox that some pn people do. No ,I am sorry if that is what you got from this. They talked about the injections into the nerves. They. just kept telling me that they have had pn patients,but it seems they do not know about pn. I will sit down with them and we will get this all straighned out. So we all have a better understanding.

river133 wrote:Karyn,what I was asking ,was about the botox that some pn people do

river133 wrote:When I was on the table waiting for the steroid shots, I mentioned to the nurse, does anyone deal with pudendal pain here, the guy said sure we do, it is a generic of botox.

I guess I'm really confused, Ell. Sorry. I did think we were talking about "freezing the PN" and to the best of my knowledge, I don't believe botox is injected into nerves.
Did they happen to mention where they wanted to inject you with the botox? Usually, it's for a specific muscle group, such as the piriformis, pelvic floor, etc ... I have no idea what "generic of botox" means.
xoxo