Hi, having recently become a member I have been looking to see if there are any local support groups in and around the London area, and it would appear not. Is this something we might consider or do the relatively low numbers of sufferers in the UK make it not worthwhile? I'll tell you what got me thinking along these lines. I had a pm from a member saying she is going to see Dr. Branowski in London next week and she is travelling on her own from Scotland. I live about an hour's travelling time from London and am quite willing (my wife also) to help anyone travelling a long distance to London for treatment by offering a bit of advice, moral support or indeed an overnight stay if needed. London is a big strange place, and can be quite intimidating, and having visited Prof. Carlstedt there last week, I was so glad that I didn't have to travel an enormous distance. Anyway, food for thought perhaps, and the offer is there for anyone coming to London if I can help in any way.
John
Support group
Re: Support group
Hi John,
I live in the US, but I just wanted to tell you how thoughtful and generous your offer is!
I hope you are able to find a support group in your area. It's a pleasure to have you as a member of our "online" support group!
Warm regards,
Karyn
I live in the US, but I just wanted to tell you how thoughtful and generous your offer is!
I hope you are able to find a support group in your area. It's a pleasure to have you as a member of our "online" support group!
Warm regards,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Re: Support group
Thank you Karyn, it will be a pleasure to help anyone if I can, I'm so grateful for the help I have received from this fantastic site in such a short space of time.
John
John