Thanks
Posted: Wed Jan 16, 2013 12:01 am
I thought it was time I made an appearance at least to say thank you for this wonderful forum, where I've gained much information and help.
Nobody has officially diagnosed me with PN, but I seem to have classic symptoms which developed after hysterectomy and TVT (so-called "bladder sling" surgery). Following advice I read here I stopped sitting altogether. This, along with a tiny dose of Gabapentin, has kept my pain level fairly low most of the time.
I finally found a surgeon who didn't dismiss my symptoms and completely removed the sling in October. I believe the mesh had entrapped my nerves; immediately after my first surgery I had excruciating, pulling pain which seemed to resolve over the course of weeks, but soon erupted into full-blown symptoms of what I believe to be PN.
I'm alternating between hope and resignation. Immediately after mesh removal the nerve pain was intense, which was to be expected as the impinged nerves were re-injured in the process of being freed. It's now 3 months after mesh removal and I'm barely back to pre-surgery levels of pain. I have started physiotherapy, and I feel cautiously hopeful it will help, especially as the damaged nerves begin to heal.
Of course reading all your stories makes me realize it's not so simple, and from mesh support sites I know that those who develop pudendal issues seem to have the poorest outcomes in terms of improvements in pain after mesh removal. It's a long journey I'm on now. Thanks again to all for posting your experiences for us to learn from.
Nobody has officially diagnosed me with PN, but I seem to have classic symptoms which developed after hysterectomy and TVT (so-called "bladder sling" surgery). Following advice I read here I stopped sitting altogether. This, along with a tiny dose of Gabapentin, has kept my pain level fairly low most of the time.
I finally found a surgeon who didn't dismiss my symptoms and completely removed the sling in October. I believe the mesh had entrapped my nerves; immediately after my first surgery I had excruciating, pulling pain which seemed to resolve over the course of weeks, but soon erupted into full-blown symptoms of what I believe to be PN.
I'm alternating between hope and resignation. Immediately after mesh removal the nerve pain was intense, which was to be expected as the impinged nerves were re-injured in the process of being freed. It's now 3 months after mesh removal and I'm barely back to pre-surgery levels of pain. I have started physiotherapy, and I feel cautiously hopeful it will help, especially as the damaged nerves begin to heal.
Of course reading all your stories makes me realize it's not so simple, and from mesh support sites I know that those who develop pudendal issues seem to have the poorest outcomes in terms of improvements in pain after mesh removal. It's a long journey I'm on now. Thanks again to all for posting your experiences for us to learn from.
