Health Organization for Pudendal Education

I have suffered with peripheral neuropathy for the past 14 months following treatment with Bortezomib for Myeloma. It affects the soles of my feet, making walking very painful. In addition I had severe pain all around my rectal area and still cannot sit without leaning to one side of my buttocks. I recently sought help at The London Pain Clinic (none of my medical advisers had offered me other than standard medical treatment - I'm on Fentanyl 75mcg/hour, Pregabalin 450mg and Amitriptyline 50 mg).

I received pulsed radio frequency treatment to my Pudendal Nerve and Ganglion of Impar on 16 November 2012 and am hoping for some improvement. I sympathise with everyone who has this condition. It takes a lot of energy and focus knowing that this might never be cured.

Best wishes to everyone. May you all find peace and be happy.

Welcome to the forum. I'm sorry you have gone through so much. I met a women once who was suffering from peripheral neuropathy due to radiation for cancer and she was trying hyperbaric oxygen treatments to see if it would help the nerves to heal. I'm sorry I don't know the results of her treatments but it might be something to inquire about from your physician.

Best regards,

Violet

Hi Boleynboke,
Welcome to HOPE! I'm so very sorry for everything you've gone through. I've often heard of folks acquiring neuropathies after chemo treatments. It just doesn't seem fair to overcome one condition, only to gain another.
I wish you the very best with your PRF treatments and hope you come back to keep us informed about your progress.
We're here to offer kindness, understanding and support.
Best regards,
Karyn