Health Organization for Pudendal Education

Hello, my friend Sunil!
Thank you for sharing your new development! I'm so excited for you that you may have found an opportunity for PN imaging. This is huge!!!
Did they tell you why you have to fast for 6 hours? I sincerely hope this scan provides you an explanation for what's wrong with you.
Keeping you in my thoughts!
Warm regards and best wishes,
Karyn

Hi Sunil,
How did you do with the dye infusion? Were you OK with it or was it uncomfortable? I have high hopes that the scan will provide your doctor with the information he needs to treat you properly. It's about time!
Thank you very much for sharing your information. You have a kind heart with your desire to help others.
I'll be anxiously awaiting to hear how things go for you on Monday!
Warm regards,
Karyn

Hi Sunil,



Peter also told me about his new MRN research. i'm looking forward to hearing how it all went. Good news from the US too about Dr. Hollis Potter and her imaging techniques. Hopefully Peter Dornan will be able to come up with better imaging for Australians.

I've been doing quite well with the exercises he sent me. My pain levels are still improving and I'm more than 3 years post PNE surgery.

Catherine

Hi Catherine and Sunil,
It would be a good idea for Dr. Peter to get in touch with Dr. Hollis Potter in NYC.I believe that Dr. Peter is using 1.5 Tesla MRI like Dr. Olga Kalinkin because she uses dye contrast as well.

Best Regards,
Ali

I wish you all the very best Sunil with the treatment. Did the MRI come with a written report? Can you post here what the report said. I agree that you need to stick with those who know about PNE and unfortunately Australia does not have many.
It's people like us who are leading the way and teaching them as we go.

Are you staying in Brisbane for a while or are you flying back and forth? I'm amazed that the MRI can show the nerve compression. My MRI reported all was normal for a post hysterectomy pelvis. I can't find my MRI report. I think I left it in France with Dr. Bautrant. It didn't help me anyway as nothing abnormal was indicated. I did in fact have severe entrapment. 4/4 on the entrapment scale. (4 being the worst.)

Keep in touch. Best wishes.

Catherine

Hi Sunil,
Did he mention the ligments and the Alcock's Canal in your report as well as the as the branches of the Pudendal nerve in his report.Or was it just an oridinary MRI.I had so many MRI's over the last few years but everything showed normal.You have to have an MRI which is Pudendal nerve specific like Dr. Potter or Dr. Olga kalinkin who works with Dr. Michael Hibner.

Best Regards,
Ali

Below is an email to myself from Peter Dornan, Sunil's Physio. I will ask him if the radiologist used MRI or MRN.

Dear Catherine,

Thank you for the information concerning Hollis Potter. I will relay this on to my radiologist friend in Brisbane.

As I may have mentioned, Dominic (my radiology friend) has done an MRI for a patient of Aaron Filler in Pasadena. Filler has written the first peer-reviewed article on MRI of PNE where he documents the sites. (Neurosurg Focus 26 (2):E9,2009. He commented that Dominics photos were actually better than his.

We have done 2 so far.

Both with very debilitating sequelae. I would have suspected both to show some entrapment, but the MRI says otherwise. This would mean, to me, that the PNE symptoms are related to the altered biomechanics of the pelvis and the nerve is simply permanently stretched, not really entrapped. So far, by using the program I have told you about, I have been able to make a difference.

I hope your symptoms continue to improve.

Hi Sunil,

Entrapment was confirmed by Dr. Eric Bautrant in France. His conclusion came about as a result of the following reasons:

Event which brought on PNE symptoms - Pelvic surgery.

Degree of pain and symptoms - 10/10 with all of the symptoms. ie burning genitalia, severe muscle spasms, burning painful buttocks, (like being scalded or whipped) Feeling of something being stuck in the rectum and vagina.
Feeling like the pelvic floor was hanging down to the ground. Feeling like I was giving birth out the front and the back passages. Severe pain and burning around the sacrum, hips, back of thighs.
Chronic constipation, bladder incontinence, no feeling and no control in bladder and bowel.

Treatments - Physiotherapy, Botox, Massage, Cortisone, Painkillers, anti-depressants etc.

Tests - Rheumatism, Leukemia, Tumor, Infection, EMG, MRI (normal) No other cause found to account for pain.

Nerve Blocks - Positive. 3 - 6 hours pain relief. (Diagnostic tool indicates the Pudendal nerve is involved.)

Ultrasound of Pudendal Artery - Showed impingement of blood flow in lower right side of pelvic floor. ie. Blood flow was very slow in right side pelvic floor where everywhere else showed normal blood flow. Blood was trying to squeeze
through squashed artery. (Pudendal artery and nerve are in the same sheath.)

Tinels sign - When examined via the rectum I jumped with shock when the Pudendal nerve was touched by Dr. Bautrant. (known as Tinels signal.) He confirmed that nerve was very tight and was being impinged.

Surgical confirmation - Found to be severely trapped at Sacrospinous and Sacrotuberous ligaments. (Constitutes a claw like grip encasing the nerve.) Severe fibrosis (scar tissue) at Alcocks Canal impinged on nerve

All the above were taken into consideration when concluding that the nerve was trapped.

Catherine

Hey there , I hope everyone is progressing , Now i heard that a T3 gives a better image , ?? as there is one at Coorparoo at Queensland x-ray or do you need a 1.5 ??
Now also what is this procedure called with the die injected ??
and what does it high lite ?? what does it show ??
Also sunil does Peter do his SIJ test standing ,sitting and laying down ??? or did he see something on the MRI ???
How new is this MRI technique of Peter Dornan

Hey there sunil ,i have seen Peter Dornan a couple of years ago , it seems he has taken a greater interest in PNE since then ,my reason for my question is to see if he has upgraded his diagnostic techniques etc and pelvic exercise protocol ,he missed that my coccyx was out by 6mm and there was torsion occurring in the sacrum , this created more problems in the pelvis