Dr. Andrew ESWT approach to treating PN on Pelvic Messenger

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Faith
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Joined: Fri Oct 15, 2010 5:15 pm

Dr. Andrew ESWT approach to treating PN on Pelvic Messenger

Post by Faith »

Tommorrow, April 17th at 12pm EST Dr. Kirk Andrew will be on The Pelvic Messenger talking about his alternative treatment for PN and pelvic pain using extracorporeal shock wave therapy and other techniques. IF you can't listen tomorrow you the show will be recorded and can be listened to here (past shows can also be found here)http://www.blogtalkradio.com/pelvicmessenger There's been a lot of talk about ESWT lately so I thought this might be of interest to people.
-11/08 vulvodynia began around conception of first & only pregnancy
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
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helenlegs 11
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Joined: Fri Sep 17, 2010 9:39 am
Location: North East England

Re: Dr. Andrew ESWT approach to treating PN on Pelvic Messen

Post by helenlegs 11 »

Thanks faith,
I am just catching up with blogtalk radio again. Listened to Dr's Hesselink and Dellon, both excellent in very different ways. Still have a couple to go and look forward to tomorrows show. Elizabeth and Jessica are doing a phenomenal job.
Take care,
Helen
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
Lernica
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Joined: Fri Jan 14, 2011 10:31 pm

Re: Dr. Andrew ESWT approach to treating PN on Pelvic Messen

Post by Lernica »

This was a really good interview and is definitely worth listening to for anyone who wants to understand Dr. A's approach to healing pudendal neuralgia.

Faith, do you know who set up the interview? Did you have anything to do with it? :D
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
Faith
Posts: 697
Joined: Fri Oct 15, 2010 5:15 pm

Re: Dr. Andrew ESWT approach to treating PN on Pelvic Messen

Post by Faith »

No, The Pelvic Messenger asked suggestions for guests on a Facebook forum and a few of us suggested Dr. Andrew as we have heard a lot about the success of his treatment on you and "mystoryhurts" wife. I enjoyed it as well. Thanks for sharing your experience with him so the pelvic community can be informed about a variety of different options to treat PN!
-11/08 vulvodynia began around conception of first & only pregnancy
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
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A's Mommy
Posts: 447
Joined: Fri Sep 17, 2010 12:46 pm
Location: Pennsylvania
Contact:

Re: Dr. Andrew ESWT approach to treating PN on Pelvic Messen

Post by A's Mommy »

Hey everyone--- thank you for the awesome compliments on the Pelvic Messenger. I am honored and privileged to be a host.

If ANYONE can think of a topic or health care provider they would like to hear more about, please email me directly at fightpne@yahoo.com

We are working hard to bridge the gap between the clinicians and the patient population so that ALL can be set free from the throes of this horrible disease.

Jessica

Fightpne@yahoo.com
Daughter grew completely on left side of pelvis
Multiple uterine surgeries to fix uterine adhesions, septum, and endo
Had all the conservative workups done, 3Tesla (Potter), recovering from L sided TG (Hibner) 11/10, Botox 6/11 failed, bilateral anterior PNE decompression (distal Alcock's/perineal branch), Aszmann, Vienna, 10/11; dx'd with CRPS Type 2, 12/11, Ketamine @ CCF 2/12, doing 75% better PRAISE JESUS!
http://fighting-pne.blogspot.com
http://www.thepelvicmessenger.org
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helenlegs 11
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Joined: Fri Sep 17, 2010 9:39 am
Location: North East England

Re: Dr. Andrew ESWT approach to treating PN on Pelvic Messen

Post by helenlegs 11 »

You did a great job :) .
It would be wonderful if Dr Andrew would allow his protocol to be shared and taught to other chiro's who may be interested. He did indicated to one caller :) that this could be a possibility. I hope it can happen.
I am amazed at how many great, highly esteemed people you have managed to get for the show. I do think though, that if they have an keen interest in pelvic pain and problems, which is something many medics wouldn't even try to tackle, as it's such a difficult, complicated area, it shows such compassion and humanitarianism. I guess they are just 'that kind of people'. Thank goodness for them.
Helen
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
Griff522
Posts: 314
Joined: Sun Oct 10, 2010 7:42 pm
Location: Michigan

Re: Dr. Andrew ESWT approach to treating PN on Pelvic Messen

Post by Griff522 »

Hey Lernica, did you have your hip surgery yet? If so, how are you doing?

I desperately want to visit Dr Andrew, but my family situation at the moment precludes it. I was the caller that talked to Dr Andrew about sharing his protocol with my chiropractor. She is a great person, and I know she wants to help me, but I'm not sure she has time to devote to it. I see her tomorrow and plan to discuss my plans with her. If she doesn't think she can help me as thoroughly as Dr Andrew, I'm going to have to find a way to see him.
Burning vulva pain began 10/09
Treated for SIJD 9/10 and burning stopped and pain localized to rt side
Surgery w/ Dr Dellon 5/11 - didn't help my pain
2012 - PT, massage therapy, and ART therapy from chiropractor
MRI showed labral tear and US of groin found hernias
2/13 - surgery for sports hernia
5/13 - still have obturator internus spasms
5/13 - appt with ortho spine dr
8/16/13 - Arthroscopic surgery to rt hip for FAI and torn labrum
Lernica
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Joined: Fri Jan 14, 2011 10:31 pm

Re: Dr. Andrew ESWT approach to treating PN on Pelvic Messen

Post by Lernica »

Hey Griff,

Yes I recognized you on the podcast! Nice to hear your voice!

Hip surgery went well but the recovery is rough. Surgeon discovered a "rare" condition in my hip called synovial chrondomatosis, which is basically hundreds of calcium deposits floating around in my hip joint. He flushed them all out with 9 litres of saline solution. He said no wonder my hip was in so much pain; it is like having sand in your bicycle gears. He also repaired my FAI (bone spur) and torn labrum. I was sent home the same day, which is kind of a technological medical miracle in and of itself.

My hip feels as bad now (6 days post-op) as it did before surgery but I understand that recovery takes a long time. Plus my other hip is also killing me, and so I have to start thinking about operating on that one, too. And the sore hips (and associated spasming obturator internus muscles) still make it hurt to sit, even though my PN is gone! So I don't feel much further ahead.

It's a struggle to stay positive amidst all this, but I keep telling myself that with every intervention I make, I'm getting closer to full recovery. I just wish it wasn't taking so long. Stay positive! Stay positive! Stay positive!
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
Griff522
Posts: 314
Joined: Sun Oct 10, 2010 7:42 pm
Location: Michigan

Re: Dr. Andrew ESWT approach to treating PN on Pelvic Messen

Post by Griff522 »

I'm so glad he found the problem and was able to fix it. Will the calcium deposits return? God I hope not!

Yes, recovery sucks! I hope you have help and can take it easy. And you are right to "STAY POSITIVE" because the alternative feels yucky and doesn't help.

I know for me, I walked a fine line with moving around and resting. If I didn't move I felt bad, and if I moved around too much I felt worse. I eventually found a happy medium, but finding it was a challenge.

I'm so looking forward to your post in a couple of months (or maybe 6 ;) ) about how well you are doing. Hang in there Girl!!!!!!!!!!
Burning vulva pain began 10/09
Treated for SIJD 9/10 and burning stopped and pain localized to rt side
Surgery w/ Dr Dellon 5/11 - didn't help my pain
2012 - PT, massage therapy, and ART therapy from chiropractor
MRI showed labral tear and US of groin found hernias
2/13 - surgery for sports hernia
5/13 - still have obturator internus spasms
5/13 - appt with ortho spine dr
8/16/13 - Arthroscopic surgery to rt hip for FAI and torn labrum
User avatar
helenlegs 11
Posts: 1779
Joined: Fri Sep 17, 2010 9:39 am
Location: North East England

Re: Dr. Andrew ESWT approach to treating PN on Pelvic Messen

Post by helenlegs 11 »

Lernica wrote: Stay positive! Stay positive! Stay positive!

So much easier said etc. . . BUT you know we are sending our most positive thoughts your way. It's got to be tough, but then so are you! :)
Take tons of care,
Helen x
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
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