Hello all,
I have written a little bit on this site before, but I haven't posted since my surgery on 11/4/11 with Dr. Hibner. It has been about 5 months post-up and I'd say I'm about 15-20% better. To sum things up, Dr. Hibner explained to me that I didn't have too much of an entrapment of my pudendal nerve, but found a nerve that he had never seen before (Dr. Weiss seems to think its the inferior rectal nerve, but I dunno). He seemed pretty confident with his release of both the two nerves and that the neurowrap will help. But as of now, I'm not seeing the results that I thought I would have by now.
To let you know a little bit about my history, I went through the typical pre-op list (pt, meds, nerve blocks, etc.) and I easily decided to opt for surgery. Since then, it has been a very slow process of healing. I tend to sit with a heater by my feet or a blanket over me and can sit for about a half an hour in intervals (albeit with a slight to moderate base line of pain). I spend most of my day still trying to avoid pain flares while working a part-time internet gig...but I'd like to do a lot more. Moreover, it seems that temperature/warm weather provides me with extended relief. And for those of you dealing with feet pain, I highly recommend crocks (they come in all different fashions) as they loosely grip your feet.
Since the surgery, I have been walking 30-60 minutes a day, usually to decrease small pain flares. I see Dr. Weiss every 1.5 months (who prescribes me the usual nerve pain meds), but most just to confirm my disability with my old job. In the past week, I've re-started physical therapy with his office. And now I'll be taking up the fight of defending myself to an Independent Medical Exam (IME) for continued disability benefit payments. It really sucks defending myself, even though I look relatively healthy (I'm 25). From reading other blogs, I might have to walk in with a cane and maybe lay down. Any tips would be greatly appreciated. And if I missed anything or you guys have any questions, feel free to ask. Hoping for better days ahead.
5 Month Post-up with Dr. Hibner
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ntrenchard
- Posts: 11
- Joined: Tue May 03, 2011 6:54 pm
Re: 5 Month Post-up with Dr. Hibner
Just another note: My entrapment was actually above the sacrospinous and sacrotuberous ligaments (closer to the base of the nerve), which was odd.
Re: 5 Month Post-up with Dr. Hibner
Hi NT,
It's still pretty early after surgery to draw any conclusions I think. Just wanted to say I hope you continue to see improvement and that you win your disability fight.
I wonder if that extra nerve is what's called morestin's nerve. I knew one women who had that and as I recall it's called that when the inferior rectal nerve comes directly off the spine instead of off the pudendal nerve. You can see my post in this thread (2nd post down) http://www.pudendalhope.info/forum/view ... 7&start=10
Wishing you all the best with your recovery.
Violet
It's still pretty early after surgery to draw any conclusions I think. Just wanted to say I hope you continue to see improvement and that you win your disability fight.
I wonder if that extra nerve is what's called morestin's nerve. I knew one women who had that and as I recall it's called that when the inferior rectal nerve comes directly off the spine instead of off the pudendal nerve. You can see my post in this thread (2nd post down) http://www.pudendalhope.info/forum/view ... 7&start=10
Wishing you all the best with your recovery.
Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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helenlegs 11
- Posts: 1779
- Joined: Fri Sep 17, 2010 9:39 am
- Location: North East England
Re: 5 Month Post-up with Dr. Hibner
Good luck with your disability battle. I also would say from posts on here that there is still time for improvements post op. Hang in there, hope things woirk out for you.
Take care
Helen
Take care
Helen
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
Re: 5 Month Post-up with Dr. Hibner
Hello entranchard,
I was seeing Dr. Weiss here in san fran for 4 months and the PT did not help me as hesent me toHibner in phoenix for botox, and then clitoral nerve blocks whichdid not help sohteytold me I need decompression surgery and I cannot afford that tobe honest..
its hard travelling from san fran to phoenix and I am currently trying to find a differnet place to stay cheaper than where I am to see if I can get my help in phoenix.
i am on disabilty but its not enough to live on unless you can work also but I cannot sit at all and walking or lying down sets off my sharp clitoral pain.
I hope you are doing better.
lexie
I was seeing Dr. Weiss here in san fran for 4 months and the PT did not help me as hesent me toHibner in phoenix for botox, and then clitoral nerve blocks whichdid not help sohteytold me I need decompression surgery and I cannot afford that tobe honest..
its hard travelling from san fran to phoenix and I am currently trying to find a differnet place to stay cheaper than where I am to see if I can get my help in phoenix.
i am on disabilty but its not enough to live on unless you can work also but I cannot sit at all and walking or lying down sets off my sharp clitoral pain.
I hope you are doing better.
lexie