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sciatica

Posted: Wed Apr 04, 2012 9:57 pm
by river133
Surgery for me was 15 months ago, I have not noticed a difference as far as pain goes.. I am sitting right now,, this pain has just become my normal,
For the past 10 years I have been bothered with sciatic pain and also bursitis... I am conviced now that until that problem is taken care of my pn will not heal... I have learned that the sciatic nerve along with the pn and one other nerve that I do not remember the name of ,are sisters and what affects one affects the other.. So this time I am going back to the Mayo clinic with a diagnosis. ..I will be seeing Dr. Robert Spinner... Dr.Isreal Chambi suggested him to me... My gp is getting my records together.,. Maybe I should have known this a long time ago, The difficult journey continues... Wishing you all well . :D

Re: sciatica

Posted: Wed Apr 04, 2012 11:08 pm
by river133
Knowing my body ,I feel that the pn was entrapped as a result of the piriformas and sciatic problems.. If you think I am daffy for thinking this , let me know.... :)

Re: sciatica

Posted: Thu Apr 05, 2012 1:29 am
by janetm2
Although I do not know anything about sciatica I would not say anyone was daffy! Also there is no reason unless you studied sciatica as a doctor that you should have known this a long time ago. We are the victums of doctors who do not have enough information on PN and PNE along with combinations of whatever else is wrong with us. You have been to 20 doctors which is not a reflection on you and I only hope you are now on a path that will lower your pain. We cannot fix the past but can look towards a brighter future. Take Care
Janet

Re: sciatica

Posted: Thu Apr 05, 2012 12:41 pm
by Karyn
Hi Ellie!
I'm so very glad you're looking into your piriformis as the cause of your sciatica. You're absolutely right about the PN, sciatic and PFCN running very close together.
Are you going to the Mayo Clinic for a piriformis diagnosis?
Love,
Karyn

Re: sciatica

Posted: Thu Apr 05, 2012 4:40 pm
by river133
Ok Karen , what is the pfcn nerve? I did say that I am convinced the pn is the cause of the piriformis and sicatic nerve. I am out of wack on my left side... Now , Please tell me what your surgery was and how you are doing now? is it too early to tell? I will let you know what date I will be going back to Mayo. Just getting records etc together ..MY mris from 15 months ago show no bulging disks etc.. said my pain was not from my back..I sure do hope this Dr. Spinner know what to do with me... :D
Let me know about you Karen. you could pm me? sending you sunshine and hugs....

Re: sciatica

Posted: Thu Apr 05, 2012 5:53 pm
by Karyn
Hi Ell,
Giving you a call!

Re: sciatica

Posted: Thu Apr 05, 2012 7:04 pm
by helenlegs 11
Hi Ellie,
I have been diagnosed with 'a complex variant of the piriformis syndrome involving the sciatic, pudendal and superior gluteal nerves from a Dr Filler consult in London a couple of years ago. I think this has been my most succinct and correct diagnosis given my symptoms (they wanted to give a lumbar spine problem before that but there is no lumbar impingement ???) So I think we must be fairly similar.
Since then my pain Dr has speculated that my post femoral cutaneous nerve is also involved as he could not get all of my symptoms to add up with that 1st diagnosis. I think he is spot on adding that nerve, given my pain and areas affected in fact I haven't got a clue about the superior gluteal nerve (in Filler diagnosis) and could easily discount that one. ( I don't know how that nerve affects you) I reckon that ALL of my symptoms can be accounted for by the sciatic, pudendal and post femoral cutaneous nerve now that I know a bit more about it all.
Not sure if this has been any help but if your daffy then so am I :D
Take care
Helen

Re: sciatica

Posted: Sat Apr 07, 2012 12:49 am
by river133
It is ok if we are a bit daffy. We have all been through hell. I just do not know all of the names of those nerves and also many of the terms. By the way i changed my mind about seeing dr spinne at the mayo clinic i just do not want to go through thei re hoops.nbesides that i had some very good advice from paulette and karyn. I am wating for a call from dr chambis office in santa anna.
Should hear by mon. Forgive me for my punctuation. I am using my tablet. This disease is sooooo expensive. Will keep you posted.
:)

Re: sciatica

Posted: Tue May 29, 2012 6:29 am
by bergdalm
helenlegs 11 wrote:Hi Ellie,
I have been diagnosed with 'a complex variant of the piriformis syndrome involving the sciatic, pudendal and superior gluteal nerves from a Dr Filler consult in London a couple of years ago. I think this has been my most succinct and correct diagnosis given my symptoms (they wanted to give a lumbar spine problem before that but there is no lumbar impingement ???)
I have had a huge increase in sciatic pain and tingling throughout my hips and legs, its pretty much constant goosebumps! I did explore the concept of piriformis syndrome with my new PT recently and she said things are definitely tight. What steps did they take with you in regards to sciatic symptoms and piriformis issues?

Any suggestions would be great!

Thanks,
Mel

Re: sciatica

Posted: Tue May 29, 2012 1:32 pm
by helenlegs 11
Hi Mel,

I had a number of treatments once the piriformis element/cause was diagnosed, also by a PT btw, starting with piriformis stretches; see here http://www.spine-health.com/video/sciat ... rome-video
These exercises can often help release a tight piriformis muscle caused by piriformis syndrome and even cure classic piriformis syndrome. I would ALWAYS start with the very easiest and not overdo it, especially at first and especially if nerve pain (shooting, burning etc) is involved. These exercises really do help with a tight p muscle but can sometimes cause a flare of nerve symptoms. Some pathologies involve the sciatic nerve passing through instead of under the muscle so these people are more prone to a nerve flare when the muscle is stretched through these exercises.They are also more prone to sciatica of course if the muscle is compromised.
Do stop any stretch if there is any pain or the pain escalates.
Experimentation is the only way to find out if this will help at all, remember that there can be some delayed pain so stick to a few reps in the beginning. For me they can bring some buttock pain relief for a while, some people find total relief once the muscle is relaxed.
Myofascial release/piriformis trigger point massage with a PT who knows about this area, can also be tried, sometimes followed by heat treatment. A competent physiotherapist may also be able to identify if the muscle does have any painful trigger points or is problematic (sorry think you already have this info as reported 'tight').
Non of this had any lasting effect for me so I had dry needling, acupuncture and acupuncture with feathering. The needles were very difficult to get in and then were almost impossible to remove so at least this did indicate a muscle in spasm.
After this I was referred to a pain consultant who is PN aware and was given a steroid shot into the muscle. This did nothing after the initial anaesthetic had worn off and I was given a botox injection again into the muscle. That was the only thing that had any lasting effect. I only had one side (worst) done so could tell how much better that side was as the other side became painful through the day. It didn't do anything for the nerve pain unfortunately and it is presumed that the scar tissue in the muscle will need to be removed before There can be any improvement . The muscle pain relief continued for around 2 months, although gradually diminishing I could still feel a slight benefit up to 4 months later.
Another thing to add, if you try acupuncture and it is painful DON't try the feathering technique where the needle is 'pulsated' up and down. This was excruciating and in the end did no good either. The piriformis injections were equally as painful but that was just for a short while by comparison so worth trying if all else fails.
Personally, given the resources I would now like to try the shockwave therapy by Dr Andrew in Cornwall, Canada but until I hear someone local to me can do a similar treatment, decompression surgery will be my next step. Hope the above helps you long before you get to that stage :)
I take it that you haven't any lumbar spine problems? I would also take a look at the SI joint, pelvic misalignment with your PT, labral hip tears and maignes syndrome. They have all been covered in posts on this forum. Any ordinary pelvic mri scan can also determine if there is any asymmetry with the muscles especially if unilateral symptoms. MRN scan will sometimes be able to see nerve involvement but it is not always conclusive as this imaging still needs some development.
Hope this helps
Take care,
Helen