Health Organization for Pudendal Education

Hi everyone,
I am new here,i live in VA,and i just got my MRN report :

IMPRESSION: No MR evidence of pudendal nerve abnormality.

however...

VASCULAR:
Diffusse congestion of the pelvic veins.

MUSCLES/TENDONS
Hamstring tendon: Tendinosis bilaterally.

What do you think?

my pain is in rectum,sometimes vagina ,buttocks(sometimes) and perinium


Lola2

I TOUGHT THIS WAS HOPE....FOR PUDENDAL NERVE ISSUES.

AFTER WAITING FOR YOUR REPLIES ,I CALL THIS WEBSITE"NOPE"

Hi Lola - I think the reason that you haven't got any responses is that you haven't told us much about this, so we are not able to give you any constructive comments. Could you tell us who did your MRN? And surely the report was more than 3 lines long?

Oops have just realised I posted with my Mod hat on, sorry about that, I forgot.

Hi,
Thanks for responding,and yes the report wasn't long.
Why does it matter who made the MRN? i mean really?,i think after reading and reading here about potter MRI prottocol that she has either way she has a a magical
crystal ball and sees everything that anybody can,or she is just a fraud.and is playing with peoples mind!
I am sorry Calluna i am not buying that,i think that people here is trapped and desperately need to hear or read that their actual pain is PN/PNE.

Thank you anyway.

Ok, so a very short report. I asked, because often it is a couple of pages long.

I am startled to hear you say that Potter 'is a fraud and is playing with peoples mind'. And obviously she doesn't have a 'magical crystal ball' either, it is simply that she uses her own software to interpret the MRN. It is clear from what you say that you neither like nor approve of her, and no doubt you have your reasons. But I do think that it is worth bearing in mind that there are people who have had surgery following an MRN with her, where her MRN findings have been borne out by what was found during surgery.

And to be honest I think everyone with PN would much rather that they did not have it - it is most definitely not a condition that you want to be told you've got, because it is so difficult to treat. I certainly don't think that anyone is desperate to hear that they have it.

With regard to your MRN, I don't think we're going to be able to add anything to what you already know. Your report says that there is no evidence of pudendal nerve abnormality, that's very straightforward. Do bear in mind though that this doesn't mean there isn't any abnormality, just that this MRN did not show any.

Bilateral hamstring tendinosis is nothing to do with the pudendal nerve, nothing to do with PN symptoms. But maybe it might explain why you have buttock pain, if it is high hamstring tendinosis?

Diffuse congestion of the pelvic veins - this one is interesting. There are several discussions ongoing in these forums about pelvic congestion at the moment. It can cause PN symptoms as I'm sure you already know.

What does your doctor suggest next?

Hi Lola,
I agree with Calluna. Your MRN report doesn't leave much room at all for opinion. As far as asking who ordered or read the scan is concerned, it really does matter. The more information you can provide, the more help you may be able to get from the group.

calluna wrote:Bilateral hamstring tendinosis is nothing to do with the pudendal nerve, nothing to do with PN symptoms. But maybe it might explain why you have buttock pain, if it is high hamstring tendinosis?

This is correct. I'm sorry your ordering physician hasn't explained this to you.

Lola2 wrote:VASCULAR:
Diffusse congestion of the pelvic veins.

There are quite a few in this group who have had this show up on an MRI/MRN. Many of them have gone on to have embolizations in an effort for pain relief. Based on their reports, the procedure provided them with no pain relief or reduction of their symptoms.

Karyn! How are you doing??? I had no idea you had surgery! What did you have done? (Sorry Lola for hijacking your thread.)

I'm sorry to hear you are hurtin' so much. As you know, things will get better! We're all thinking about you and sending you warm healing wishes.

Thank you, Lernica.
I had bilateral ilioinguinal and iliohypogastric neurectomy this past Tuesday. I'm having a harder time with this surgery than the PN. Probably because the incisions are abdominal, so of course everything is a problem - sneezing, coughing, moving ....
I'm sure next week will be much better. Thanks so much for your kind words and well wishes!

Hello Lola and welcome to the forum.

The bottom line is, MRI's and MRN's are not proven to give a 100% accurate diagnosis when it comes to pudendal nerve entrapment. There is no diagnostic test that is 100% accurate. There are people whose MRN's showed no evidence of pudendal nerve entrapment who went on to have surgery and were found to be entrapped by the surgeon.

My understanding is that most docs base their diagnosis primarily on symptoms and clinical presentation/exam. You can check out the article by the Nantes team on diagnostic criteria:

http://pudendalhope.org/sites/default/f ... iteria.pdf

Best,

Violet