Health Organization for Pudendal Education

Do any of you know anyone who has an implanted pain pump for this condition and is it working out for them. I did a trial with bacolflin and it made the private area feel all engorged just like you were going to have a tooth pulled out.Not a good feeling I am looking for someone who has a pump that is using an opiate in the pump. Anyone beside Amanda with a successful stim for that matter.

The only person I ever remember posting good success with a pain pump was Barbi from the old forum. She loved it but I remember her doc had to place the catheter several times before getting it right. I don't know how many docs would have the patience to do that until they got it right.

I remember writing back and forth with "Peg" or "Peggy" from the other forum and she had a pain pump. I think it worked for a while but then her tolerance for the meds went up so high and her doctors didn't want to increase them anymore and she said it had become ineffective and maybe even had it removed This is to the best of my memory and it has been a while since we corresponded.

When i spoke to my two pain specialists one in Ireland and in belgium they regarded a pain pump as a last resort to pain management....the intolerance of pain medications and resulting dependance of medication makes this treatment the final resort. We did have a member who had many contraindiations in the form of absess's etc int he site of the pain pump. The whole idea is to reduce the medication useage and thats why Stimulation is a preferred option before a pain pump.