Lumbar puncture

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Question
Posts: 34
Joined: Sat Jun 04, 2011 12:12 pm

Lumbar puncture

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Hello - my latest neurologist wants me to have a lumbar puncture as he suspects non-mechanical inflammation/infiltration of S1/S2/S3 nerve roots may be responsible for my symptons. I have had multipple MRI, including one with Doc Potter, that show no lesions or scarring in Lumbar or Pelvis. Also had multiple injections, including ischial spine/piriformis and Alcock and inferior cluneal nerve and a caudal epidural. Also one injection into the right hip. None of them worked either diagnostically or thereputically. My symptons started of with right sided bottock pain on sitting/then testicular tingling on sitting and then burning feet (not positional related). Latest nerve conduction study shows S1 nerve root conduction slowing down from a year ago. Wondering whether anybody has on any views on whether my symptons could come from S1/2/3 rather than pudendal nerve etc. I am scared about having a lumbar puncture as I have read about some nasty risks. All views appreciated.
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Karyn
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Joined: Fri Sep 17, 2010 12:59 pm
Location: Lowell, MA

Re: Lumbar puncture

Post by Karyn »

Hi Question,
A lumbar puncture certainly does sound scary. I'm not familiar with the procedure - what does your neurologist hope to gain? To relieve pressure? Did he perform a test to confirm inflammation or is he guessing?
Question wrote:Wondering whether anybody has on any views on whether my symptons could come from S1/2/3 rather than pudendal nerve etc.
Well, your the PN originates from those sacral nerve roots.
Question wrote:and then burning feet (not positional related).
Depending on the area of burning; could be the sacral nerve roots as well. And/or the lower lumbar spine (L1 -L5).
This isn't my favorite dermatome map, but maybe you can match up some of your symptoms by viewing it:
http://www.backpain-guide.com/Chapter_F ... pathy.html

Wishing you the best, Question. Please keep us updated!
Warm regards,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
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Violet M
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Re: Lumbar puncture

Post by Violet M »

Question, if your S 2,3 nerve roots are irritated you can have the same symptoms that you would have with pudendal nerve entrapment because the pudendal nerve comes from S 2,3,4. I don't blame you for being a bit nervous about this diagnostic test. Would they be using image guidance?
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
ilovebuddy
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Joined: Thu Apr 19, 2012 2:16 am

Re: Lumbar puncture

Post by ilovebuddy »

Would an MRI of the sacrum be a good idea before checking for PNE? Would it show misalignment?
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Violet M
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Re: Lumbar puncture

Post by Violet M »

An MRI would be a good idea but it won't necessarily show a misalignment. You can ask them to check for tarlov cysts and you ask if they could use Dr. Hollis Potter's protocol to check for pudendal nerve entrapment.

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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