Health Organization for Pudendal Education

I am new here and am trying to figure how to live without losing my mind if I do indeed have PN. So how do you all type on the computer if you can't sit? I try to type lying down (because I don't have a cushion at all that works even for 5 minutes), but it really bothers my neck. Does anyone use a special bed desk or anything?

Faith

Many people have different cushions so maybe you need to try a different one.
As for desks we also have many solutions - some that rise up and down to allow you to stand or sit and even ones that let you lie down to type.
I know of some people who work lying on a bed all day long. I lie on my couch with pillows and ice, and I use a swivel laptop stand which allows me to have good posture in my back and neck but allows me less pressure on my Pn regions.

As for sleeping, i used to use several pillows under me but now I have got a Memory Foam Matress and also a Memory Foam Matress Topper so it feels like im floating when Im in bed which is lovely...I would recommend one to everyone with PN.

Take care

I can lie on my stomach while typing on a laptop in bed, without bothering my neck if I prop a double layer of pillows under my my chest area.

I have a set up that I can easily go from lying to sitting to standing. I've discovered that you have to change positions often with this illness. Here's an explanation of it -- hope it's not too complicated.

I have a lounger that's like a low bed.

Over the lounger I have an airdesk that I put my keyboard on so I can easily adjust it to the right height.

http://airdesks.com/
My keyboard is hooked up to a laptop that is on another cart that's at an angle over the lounger so I can lie down and just look up at the laptop screen but the airdesk is in front of it with the keyboard on it so my neck doesn't get sore.
For sitting/standing I have one of these from bizchair.com right next to my lounger.

Height Adjustable Mobile Laptop Computer Desk, NAN-JN-2792-GG by Flash Furniture
On this table I have a flat screen monitor (hooked up to my laptop) and I can easily move my keyboard from the airdesk over to this table.

You can find lots of loungers online. I cant' find my exact one but this is similar except I have mine flat:
I think you can get all of this stuff for under $500. I know that sounds like a lot but it's worth it.

Thanks for the helpful suggestions. Does anyone have a "travel lounger" or something they take places when they go say to a friend's house or to a family gathering?

Faith wrote:Thanks for the helpful suggestions. Does anyone have a "travel lounger" or something they take places when they go say to a friend's house or to a family gathering?

Yes i have many ideas if you need now??

sure marieyj. Would love to hear your suggestions

. I use my Vizio tablet . I got it at Costco for $289, but the prices have come down since. I can lie on my back or side, no need to sit at my pc. I love it!

HerMajesty wrote:I can lie on my stomach while typing on a laptop in bed, without bothering my neck if I prop a double layer of pillows under my my chest area.

This is exactly what I do! My couch at home is now my "office". I lie on my stomach with my laptop at the end of the couch and pillows under my chest. I had to build up to this posture as my arms would get tired at first. I started with just 20 minutes at a time, now I can be on the computer this way for hours at a time. My physiotherapist has warned me that this can pinch the lower back muscles a bit so she suggested taking a break from this posture at least every hour, even if I have no back pain. As Violet said, changing postures is the key to living with this condition. During my "breaks" I bring my laptop over to the kitchen counter and stand with one foot up on a stool (for some reason I have more pain with both feet flat on the ground). Another good tip from my phyio to help my back muscles from getting too tight is to lie on my back on the bed and hang my upper body off of the bed to give it the reverse stretch from when I am on my stomach on the couch. Hope this helps, it is a cheap solution until you can upgrade to something better!