Health Organization for Pudendal Education

This is very uncomfortable for me to ask,and is for the ladies in the foum.

Since your PN/PNE ,started reaching an orgasm has been more difficult or Extremely easier than it was before the condition?notice that i only have tried to have sex couple of times in 5 months after the hemorrhoidectomy.but those few times were ughh with those weird orgasms ,so easy to reach ,when before it was hard to reach one.
For some reason today i have a strange ,weird feeling ,like arousal ,arghh it is so annoying,i noticed that when this started like 3 months ago,and had sex reaching an orgasm was wayyy easier than was before !!!!
anyone with same issues?

Lara.

Lara,
You may want to review the PGAD Persistent Genital Arousal info I forgot what the "D" stood for but it has some related stuff. I have not tried sex since surgery or diagnosis of PNE but then not even thinking about it so I can not provide experiences.
Janet

I have the problem that my orgasms don't feel right, like they only feel 50% of what they used to. Normally after orgasm I used to feel very relaxed and that would be me for the day no more relief needed. But I have this feeling of tightness in my perineum which means I could orgasm 5 times a day and still could go on. It's a weird tightness feeling which slowly turns into pain when I sit down and then the arousal stops.

Prior to my problems I used to have a dull muscular ache in my penis and perineum after orgasm, this has now disappeared. When this feeling returns I know I will be back to normal. I can only hope.

Lara, yep, these are difficult subjects. For me, because I am so numb and being touched doesn't always feel good having organisms since this all started 4 years ago has been very difficult and like you say even when you have them don't feel like they use to. The only time I had hyperarousal symptoms was after my long term disability insurance company had me do what is called a "Functional Capacity Evaluation" and that brought on the hyperarousal. It was awful!! For me it did go away with time but made me miserable.

Well I've just done an experiment. I 'relieved' myself twice and then I let my pelvic floor muscles drop for a while. I could could feel that dull muscular ache that I used to feel after every orgasm. Also when I drop my pelvic floor muscles the tension also goes down. Is this likely to be due to tight muscles?

Reckless.

Twice? today? lol
Yeah that is exactly what my drs have told me...
Muscles muscles muscles.

I have PGAD and always feel on the verge of an orgasm, but they are harder to reach now. When I have the pain cycles, I don't want to even try, and luckily the arousal diminishes while I'm in a pain cycle, but it never goes away completely.

When I first had PGAD I had no idea what it was, and just thought I was aroused easily. Orgasms were a bit elusive and when I got one, only satisfied me for a few hours, or maybe only a few minutes sometimes. My pelvic muscles were tense all the time, perhaps only relaxing when I was asleep. It was nothing to need to orgasm four or five times a day (on purpose), and I also had the dozens of spontaneous orgasms too.. I never counted them because they rarely 'did anything' for me except let me know that all was not well 'down there'.

A couple of months into my PGAD and I noticed that it was harder to achieve an orgasm.. I always felt one was just about to happen, but when I actually tried, it wouldn't.. The more I tried the more difficult it was to get one, then the more frustrated I'd get.. Sometimes I would see it through, other times I'd give up after awhile (a looong while!).. Who has a couple of hours each time they "need" to orgasm? I was spending more time trying for one than I was working!

When I found out that 'relieving' it was only making it worse, I would go a couple/three days without trying for one. That seemed to help with the 'desensitization' of the area, and I could achieve an orgasm usually in under an hour.. There are no such things as 'quickies' for someone with PGAD in the desensitization phase.. With the pain cycle, sometimes it's a couple of weeks long, so I don't try for one then, or if I do, it's me and not hubby trying because I don't want him to hurt me and neither does he. I'm on Lyrica now so the pain is going away, so I'll see if it makes a difference for me.

nyt wrote:Lara, yep, these are difficult subjects. For me, because I am so numb and being touched doesn't always feel good having organisms since this all started 4 years ago has been very difficult and like you say even when you have them don't feel like they use to. The only time I had hyperarousal symptoms was after my long term disability insurance company had me do what is called a "Functional Capacity Evaluation" and that brought on the hyperarousal. It was awful!! For me it did go away with time but made me miserable.

what has been most effective for your numbness if anything, thanks nyt

The numbness improvedd when they took more of the bladder sling out and is just a tad better since my pudendal surgery on the right side. Removing more of the sling is what helped the most. I am still quite numb and for now, as long as I don't ever get hyperarousal symptoms again I'll just live with it. It makes sex challenging but I have other problems that make sex challenging .