Health Organization for Pudendal Education

Still in pain, patiently waiting for some improvment.. one of my siblings said, "are you not any better yet"?.. We went out to dinner one eve and I sat for about 20 minutes. So one of the people I was with,{my sister} told my other siblings that I was getting better because I was able to sit... How in the H--- do you explain to people . I finally said,, this is my own battle and I will tell you when I feel some improvment.... I also
said, I have 8 months to go, and hopefully then I will notice something,,, I can not give up the hope... I have to keep on hoping.. There is no way I can explain this to people that do not understand or have never been through this.... I put on a front continually This is not like a hip surgery or any joint.. People just do not know what is happening inside of our bodies..I sometimes feel guilty , thinking that maybe I am doing many things wrong ,, like bending etc...maybe that is why I do not notice improvement... the nerve is FREE... i need to keep remembering that... God is really testing me..... Ellie

Ellie,
There's always hope. Improvement can take years sometimes. Thinking about you as you struggle to heal. Nobody knows what we go through. Are you still on any meds ?

Wishing You All the Best,

Don

Thank you Don, Yes I went back on a small amount of oxicodine.. as much as I didn't want to... gabapentine too seems to help some... I still walk every day.. that seems to be the best part of my day...

Ellie,

You said it right..........NO ONE can understand how horrific this is. Thank God for this forum where we can talk about how we feel to people who truly get it.

Enjoy every minute of your walks! I also love to be in the outdoors.

cari

Good luck with your recovery. I know how difficult it is to hear from family 'Are you better yet'. Sometimes I wish that my suffering looked more obvious ...