Any suggestions to help stay active?

Many physical activites such as sports, pelvic surgery, etc can all contribute to PN
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GraceAnn
Posts: 24
Joined: Fri Oct 28, 2011 12:25 am

Any suggestions to help stay active?

Post by GraceAnn »

I was struck by a car while walking several years ago. I landed on my left hip with my right leg crossing over enough to scrape the knee. It took me two years to be correctly diagnosed by a PT and Dr. Mark Conway. I have had three sets of nerve blocks w/o much change in symptoms. Sitting is my biggest problem with burning mostly prevalent on left side under my cheek. I have pain with intercourse and pain with yoga, vacuuming, some forms of exercise. I am a relatively active person but haven't found a suitable program that doesn't bring on pain. As of late, I am experiencing numbing and tingling of my vaginal area as well as lower cheeks even when reclining.

Any suggestions? :(
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Celeste
Posts: 574
Joined: Sat Sep 18, 2010 2:24 am
Location: central Ohio

Re: Any suggestions to help stay active?

Post by Celeste »

Are you going to have surgery since PT and nerve blocks haven't helped? If so, I would just try to book that and worry about exercise after you recover.

Otherwise, walking and swimming are two things that many people find they can still do for physical activity. Of course with your hip injury only you can be the judge. I think any kind seated exercise machine is going to be painful for you, so that leaves a treadmill or stairmaster. I don't think elliptical has worked well for many here. I think you should try different things and let pain be your guide.

I'm very sorry about your accident and the situation you've been thrust into.
PNE as a result of childbirth, 2002. Treatment by the Houston team, with neurosurgery by Dr. Ansell in 2004. My left side ST and SS ligaments were found to be grown together, encasing the pudendal nerve.

I am cured. I hope you will be, too.

There are no medical answers on the forum. Your only hope is to go to a doctor. I was very happy with the Houston team, which has treated the most PNE patients (well over 400), more than any other US provider.

http://www.tipna.org
GraceAnn
Posts: 24
Joined: Fri Oct 28, 2011 12:25 am

Re: Any suggestions to help stay active?

Post by GraceAnn »

I'm about to make a follow up with the physician who diagnosed me. I am afraid of surgery because I have heard different opinions and also because I have a bleeding disorder which can complicate things. Thanks for answering.....it's very difficult for me to be inactive. I may take up the suggestion and do water aerobics and swimming. Walking is okay except for going uphill which seems to aggravate my groin. I have found though that this isn't true for hiking.

Once again, thanks! :o I'm learning!
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helenlegs 11
Posts: 1779
Joined: Fri Sep 17, 2010 9:39 am
Location: North East England

Re: Any suggestions to help stay active?

Post by helenlegs 11 »

Welcome GraceAnn, I was going to suggest water activities. If you try swimming stay away from any frog kicks, breaststroke and what I call old English backstroke.(It is called old english backstroke; for 'Miranda' admirers :) )
I still have to find the best programme too but I do think that it should include little and often rather than a longer stint with repercussions. I know the script but I am not very good at taking my own advice. I have promised myself to go swimming since the beginning of Sept, still haven't! but will :) Trouble is, I was a good swimmer and will hate to be with the grey haired old ladies who almost go backwards, whilst swimming forwards and don't ever get their grey hair wet. Time for me to get real eh!
Take care
Helen
Last edited by helenlegs 11 on Thu Nov 03, 2011 6:58 pm, edited 1 time in total.
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
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Celeste
Posts: 574
Joined: Sat Sep 18, 2010 2:24 am
Location: central Ohio

Re: Any suggestions to help stay active?

Post by Celeste »

GraceAnn wrote:I'm about to make a follow up with the physician who diagnosed me. I am afraid of surgery because I have heard different opinions and also because I have a bleeding disorder which can complicate things. Thanks for answering.....it's very difficult for me to be inactive. I may take up the suggestion and do water aerobics and swimming. Walking is okay except for going uphill which seems to aggravate my groin. I have found though that this isn't true for hiking.

Once again, thanks! :o I'm learning!
Good plan; that will get your heart rate up. Some pools also offer a water exercise session with heated water for arthritis sufferers. I'm not sure how much of a workout it is, but it seems like that might also be an avenue for you. I think that sometimes it can be customized for an individual by adding resistance.
PNE as a result of childbirth, 2002. Treatment by the Houston team, with neurosurgery by Dr. Ansell in 2004. My left side ST and SS ligaments were found to be grown together, encasing the pudendal nerve.

I am cured. I hope you will be, too.

There are no medical answers on the forum. Your only hope is to go to a doctor. I was very happy with the Houston team, which has treated the most PNE patients (well over 400), more than any other US provider.

http://www.tipna.org
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